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09-20-2007 until 10-21-2010
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Administrator
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Join Date: Aug 2007
Location: Puerto Rico
Posts: 562
Rep Power: 10
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Forum Rules (Updated)
Keratosis Pilaris Community Forums Rules
Please take a moment to look these points over. If for
any reason one of the rules is not complied with, you can click the "report
this post" link and it will be revised by a moderator or by me.
NOTE: The KeratosisPilaris.org administrative team reserves the right to edit any post, thread, attachment, user profile or any other user posted info to comply with the rules stated below.
- Use the search: I know that some of you get pretty frustrated when
your posts are ignored. Sometimes it's just that the question you are asking
has been asked before. Looking for other posts on your topic will help eliminate
repetitiveness and the chances of you being ignored. Plus, you might just find
the answer to your question without having to wait for someone else to post!
- No promoting: Please do not use the forum to market products or advertise
websites, that is: NO affiliate links and NO requests to "contact me for samples/consultant ID" messages. I understand that from time to time you might want to suggest a great
site or product, but if it is noted that you do this constantly and without
being provoked, you might find yourself suspended from the forum. Specifically:
NO mention of SkinCap, DermaCap, BlueCap, DermaZinc (or similar products),
will be allowed on this forum. These companies are irresponsibly distributing
steroid products that have NOT been approved by the Food and Drug Administration
(FDA). If you would like to know more about any of these products you can search
for them on any search engine and come to your own decisions on whether or not
you would like to use them. However, I cannot allow this type of product to
be mentioned, backed or promoted publicly on the message board. This is a sensitive
community and I will not let that sensitivity be taken advantage of.
- Be careful what you say: It is a good idea to describe your symptoms
when talking about the success or failure that you are posting. This gives others
a better idea of the types of skin that MIGHT benefit from such treatment.
- Refrain from talking about "Cures" or "Miracles": Or from using other misleading vocabulary. Be sensitive to the fact that there
are probably newcomers out there who possibly don't know that KP has no cure.
To talk about a product like this is misleading. Additionally, what might be
your "cure" might give another person horrendous results.
- Refrain from giving too much advice: This board is to share opinions,
not to push them. It is a good idea to refrain from being too overzealous in
your recommendations. This might come off as pushy and imposing. None of us
(as far as I know) are actual dermatologists and we cannot diagnose nor offer
treatments without all the facts. To do so would be to assume an enormous amount
of responsibility.
- Learn to look the other way: If it should happen that you are offended
by comment that has been made, but that does not necessarily go against the
set rules, please try not to take personal offense. There are many ways a person
can express them self, and many ways that these expressions can be interpreted.
If however, the posting does not comply with the set rules, as I said before,
you can click on the "report this post" and it will be reviewed. Also,
most respectable ISP's (Internet Service Providers) have appropriate usage policies
(AUP's) that prohibit intentional harassment or aggravation in chat rooms, forums,
newsgroups, e-mails, etc. A first time offender will receive a warning and the
post in question will have its contents edited, a second warning will be met
with the removal of the post, and another reprimand and a third offense will
be banned permanently from the message boards.
- When in doubt, confront ideas, not people: Should the situation present
itself where you feel that a person is incorrect, or is being inconsiderate
or insensitive, and you truly believe that their behavior, while perhaps not
illegal, deserves a reprimand, remember to focus on behavior, content of the
text, and ideas. Name calling, racial slurs, stereotypes, cruel jokes, biting
sarcasm… all just cause you to stoop down to a level that makes you no
better than the person who provoked the insults.
- DON'T TYPE IN ALL CAPS: IT COMES OFF AS ONLINE SCREAMING/SHOUTING AND 99%
OF THE INTERNET POPULATION FINDS IT VERY ANNOYING. IF YOU WANT TO EMPHASIS A
WORD OR PHRASE, THAT'S FINE, BUT DON'T WRITE AN ENTIRE MESSAGE WITH THE CAPS
LOCK ON. Please.
- Quote smartly: It can be very helpful to post any tidbit of information
taken from another source. However, if your entire message is a cut and paste
from another post or source, please think about just referring to it with a
link. If people are reading your post, they are more likely using a browser
and that other link could be just a click away. Also, signal the beginning and
end of a necessary quote noticeably. Many times, your comments regarding that
post get lost while people skim the lines that are taken from somewhere else.
When in doubt, summarize.
- Give others a break: Don't repost just because nobody jumps up in
a matter of minutes to respond to you. At certain hours, you might be the only
one on the forum. Patience! If after a day or so, no one posts, check the forum
search to see if your question has already been asked and addressed. If you
feel sincerely ignored and cannot find the answer your need, then by all means
repost!
- Name your posts appropriately: Think of the title of your post like
the cover of a book. People will most likely click on your posting because of
the title, so don't abuse or try and trick. It's a good idea to try and summarize
the contents of your post in the title. We reserve the right to edit any post/thread title at any time.
- Keep negativity on check: While it is more than accepted to seek
support, guidance and help… don't try and force your negativity on others.
If you feel uncontrollable sadness and you feel you need help… please let
us know. We are here to support you! Everyone gets bummed. But don't spread
the negativity. Always try and share the positive!
- Our Code of Conduct: Cursing, swearing and (generally speaking) bad words will not be allowed in the site. Spam and Pornography is strictly prohibited. Because we care a lot about our community members, posting your personal email address is not allowed in our forums for your own safety. If you wish to contact any forum member, you may use the Private Messaging System. We reserve the right to edit posts or threads to maintain our code of conduct.
NOTE ON STEROID DISCUSSIONS: We’ve decided to ban (potent / super-potent) steroid discussions on this board. Reason? During the past three years or so, We’ve received at least 10 communications from people suffering severe side effects from the use of these products. Some have reported skin atrophy (stretch marks), enlarged blood vessels and other side effects. Under no circumstances we’ll put this community member's health at stake.
Keratosis Pilaris is primarily a hyperkeratosis disorder, NOT an inflammatory disorder. Steroids help relieve inflammation associated with eczema, psoriasis and other inflammatory diseases. Sometimes, Keratosis Pilaris might appear concurrently with inflammation in which case they might help improve redness. However, this doesn’t go without saying these products should NOT be used for a prolonged time, over extensive areas, and/or without the supervision of a physician.
Products containing any of the following active ingredients will NOT be discussed on this forum:
- Alclometasone
- Betamethasone (all variations)
- Clobetasol (all variations)
- Clobetasone
- Fluocinolone
- Fluocinonide
- Fluranrenolone
- Fluticasone
- HC 17-Butyrate
- Mometasone Furoate
- Triamcinolone
We would like to thank you for taking the time to read through these rules.
Action will be taken against those who do not follow these terms as stated above.
Please help us in maintaining a respectful atmosphere. Thanks for your cooperation and for helping us keep keratosispilaris.org a safe place for all.
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Unete a otros hispanos que enfrentan la queratosis pilaris como tu. Aprende de sus tratamientos, cultura y costumbres...de todo un poco aqui!
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