Always suffered from acne, as of very young, must have been only 9 years old. When I was 20 I decided enough was enough and I too roaccutane. I thought i had found the key to heave, for a year or 3, my skin was perfect bliss, i found my confidence again, met my boyfriend, until BAM out the blue the KP turned up, first my left arm, then it spread all over the right arm. I went to Italy this summer, tried to boost myself to walk in short sleefs, cuz i will admit i'm a bit vain, to my disappointment, the sun only made it worse, it got more red, it spread out. I cried silentlt, cuz of course you don't want to complain too much, it's just bumps after all...Wrong, it are not just bumps to me, i have to admit it affects my being, my happiness, my confidence, and i get true moments of sadness...pathetic he

Anyways, it has now also spread to my face, and that I find the worst. Why the face for crying out loud!!! I have tried all there is in the book by now, the acids -> only made it worse ...scrubbing -> only makes it redder ...sun tanning -> only spread even more. I'm getting jealous when i read here about people whose KP disappeared, and at the same time, I notice I don't even believe these stories anymore. I still believe something must cause KP, something makes it worse certain days and better others, WHAT IS IT? Why is no research being done? Why isn't this taken seriously? Do you know how much happier a place it would be when people wouldn't have to be ashamed just to walk around in a tshirt?

I don't wanna exaggerate here, but still, I'm having one of my low moments, one of my depressive hours, i'm sure you all get them too...I just wish there was something out there for me, something that works...

I've come to the forum today because I too am VERY upset that I have this. Nothing has worked for me. I am stressed out about it. The red bumps are so ugly and spreading. My face is blochy and I am a woman for crying out loud! I want to show off my beautiful arms (they are thin and toned) but can not because they are covered in what looks like a rash!!! I'm sorry I don't have any advice for you, bumps are no bumps you are a convident and beautiful woman x o x o I wish you the best!

girl i am wonderin the same thing.. why are they leaving the research, trial and error to us patients?? we shouldnt have to do all this! I dont think they are even trying to find a cure or something that will help...yea im a lil jealous too.. when someone comes up with someone that works well for everyone then ill look into these self proclaimed "treatments"

<center> Yeah i completely agree with you guys I dont think that the majority of people take this seriously. It's definatly a serious thing a lot of them just dont understand. Im trying so much and nothings working for me ... i dont know what to do about this anymore ... :\

*I am sick and tired of being the only one in jeans and a long sleeved shirt at the beach. *I am sick and tired of people saying " you should feel lucky that you dont have somthing REALLY wrong with you". *I am sick and tired of nothing working. *I am sick and tired of always admiring everyone elses skin!!!

yeah i understand totally what all of you are feeling....i had a peeling three years ago on my arms and oh surprise it did not even make kp worse,no, i have also now three different skin colors on them.and guess what the doctors said only oh it seems you react hypertrophic which means i dont heal correctly.i was desperate and asked what i can do now because its so embarassing!and they just said well,kp is not even a disease you know start living with it.sure, but why do i have the feeling that they would f****** care if their children or themselves would have it??

It really makes me angry. I know that there are worst skin conditions out there but Hell!! this affects soo many people and it is just as bad as acne if not worse because its EVERYWHERE!!! I also get really sad about my KP. I am 22 years old and there are so many things i want to do but I feel like my KP really holds me back. I feel likes robbing me of my life. Aargh.

All I can say is that I really hate KP!!! It is very frustrating when all my friends and family keep on telling me how I look so beautiful and like a model etc (I am tall and thin, pretty face etc) and just can't understand what the problem is. I have managed to hide KP quite well, since most of the year it's cold in my country, so no one is able to see it underneath the clothes. Then luckily in the summer it gets a lot better with the tan. If only those people saw me in the winter without the long sleeves and pants......

I know there are a lot bigger problems than this but as you know, it can really affect your whole life. In the winter I would like to wear short sleeves to the clubs but no way because of my KP. People who see me see a pretty girl in a pretty shirt - just that they don't know I wear it because I "have to" <--- pretty shirt with long sleeves!!! On top of all, I was "blessed" with a very sensitive skin with dark body hair. So not only do I need to worry about KP, I also have to worry about shaving. Makes the skin very irritated, lots of ingrown hair etc.

I know this is not the end of the world but it still ****es me off. I think all of you on this site can easily agree with me.

I feel the same you do. I always get told how pretty or beautiful and bla bla I am. Unfortunately that doesn't phase me. It's like I say to myself " I know you wouldn't think I'm so beautiful when you see my legs". People would look at me totally differently. I mean I don't for care for comments and what not and I am far from shallow as are alot of people in this messed up society today. It's just that when I look in the mirror I want to be happy with what I see which is all that matters to me and when I look at these bumps all over my legs and butt it make me not even want to look in the mirror or even see myself naked. I fear that I won't be able to really get close to anyone because of this. I don't even like for my legs to be touched because of how bumpy they feel. I just feel like Im being punished and will always be because there's no cure. I would like to go swimming and to the beach but it aint gonna happen unless I go deep sea diving or something and where a wet suit where no one will be able to see my ugly skin.

Quick question to Nikita, when you went to Italy did you start eating anything new? And if you did eat something new do you still eat it to this day? Sometimes our body reacts to certain ingredients to foods in strange ways and it could have cause some type of relapse maybe? Just a theory but would like to help. Also the depression could have come from the Roaccutane. Acne drug Roaccutane linked to depression

Good luck
-Nick

I totally feel the same way. I live in Florida and when the KP goes away for a while I love my arms. It never has gone away on my legs, but I am going to try the Coconut Oil and taking a Vitamin A supplement. I need to wear some tank tops to survive the heat!!!!!

I know how you feel. Last week i had an awfull breakout (still trying to figure out why) and i started using some make up to cover it as it is full summer now here (Spain, hot hot like hell) and i had to chose. But i was so angry going on the street and seeing those beautyfull, tanned skins around and strap summer floaty dreses i dont dare to wear.
And about the why, i also wanted to post here because i have been 5 days gluten/sugar free and it seems its better. Also you might want to give a look to some celiac forums.
They talk about KP and what happened when they gave up gluten. Just guessing. But i have a gut feeling that it is related to some kind of food intolerance.There is a sindrome called Dermatitis herpetiformis that was treated like KP before (a rash, dry skin...) untill conection was found and now they are treated like celiac. It is very interesting to read and who knows...It might just be it! Given that there is no research done on KP they can never find what the ""%·%&· is wrong with us!
If gluten free diet keeps working i will let you know!
Hugs

I have a pretty stubborn case of KP, it is all over my upper and lower arms, my upper legs and buttocks. I have tried so many AHA & BHA products, and it wasnt until I tried a little known product called "Nourish" by a company called e-Topical that I noticed a difference. This company makes a 3-step program for Psoriasis. I dismissed any of the products because it was a psoriasis cream. It wasn't until I read the ingerdient list and saw that the "Nourish" product had almost 2% BHA, but also it had emollients to help soften the skin.
The AHA and BHA products smoothed the skin pretty well, but the skin felt dry and tight and almost looked aged. The e-Topical smoothed the bumps, but left my skin feeling soft and supple. This was very important, because you want the skin to be smooth, but not dried out which my skin was becoming due the twice or three times daily applications of both BHA & AHA products. Here is a link where you can watch a video of the founder or e-Topical talk about the benefits. The cream is a bit thick, but it did not sting at all!
http://www.itvventures.com/etopical.aspx?ID=lauraa

After dealing with KP for 30 years now, I am happy to have found a treatment that works!