My 12 year old son has been asked by the dermatologist he saw for the first time yesterday,to see him again for follow up visits as he believes he may be developing UO. There is not redness there it present only a bit of hair loss so he is reluctant to start any treatment until the inflammation starts up again and even then he really wasn't sure what he could do to stop it.

I live in a small town at the bottom of NZ. We have no permanent dermatologist - only one who visits every 2 months. The total population of NZ is only 4 million people so as you can imagine most derms here haven't come across UO a lot.

As a mother with UO I am very keen to prevent as much hair loss and scarring as possible - (as you guys out there know it is not that easy for a male to camoflauge his UO). I am in the fortunate position of being forwarned and forarmed about this as my son was also born with other congenital problems which are often associated with UO. I know that usually this condition is only ever diagnosed after the event of hair loss and redness so I am not sure if anyone has tried to stop it before it happened.

If you want to I would really really appreciate it if anyone is still seeing a dermatologist regarding their UO if they could perhaps ask if they know of anything to prevent the hair loss once it has started. For those of you who read the general discussion section of this site you will know there are a lot of apparent treatments for KP. I must admit I am not sure if these would work on UO and if so which one would be best. Any medical insight into how to prevent this condition from taking its full course would be very greatly appreciated.

Thanks so much for reading this.

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