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34 years later... cured - it was demodex parasite!!

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    Registered User SirDuckles's Avatar
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    Cool Re: 34 years later... cured - it was demodex parasite!!

    Ah- and also, this on a separate note- I just bought Coconut Oil. I'm going to give Oil Pulling a try as I continue my Sea Buckthorn treatments. Even if it doesn't do anything for my KP, at least it should make my teeth whiter!

    (Don't forget to read my new post on the previous page as it gives an update 7 days into the treatment )


    EDIT: 8 Days in: Starting to break out badly on my face. My back is now extremely itchy and the bumps are getting BIG. Hopefully this is it!

    Kristlyn
    Last edited by SirDuckles; 11-05-2007 at 09:13 PM. Reason: To add that last line :) :P :S ;) :o >.<




    "KP is no good. It's just a big no good."
    -A very important scientist

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    Re: 34 years later... cured - it was demodex parasite!!

    Hi Kristlyn,

    I was wondering how you managed to get such good photos of your kp. Mine is worse than yours, but when I tried to take photos of my arms and legs, the results made it look less severe (you can see my pics in the gallery). Could you tell me what brand, model (and how many megapixels) your camera is, as well as what technique you used to get good photos? (Time of day, lighting, etc..)

    Thanks!

    DtoB

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    Re: 34 years later... cured - it was demodex parasite!!

    Quote Originally Posted by deathtobumps View Post
    Hi Kristlyn,

    I was wondering how you managed to get such good photos of your kp. Mine is worse than yours, but when I tried to take photos of my arms and legs, the results made it look less severe (you can see my pics in the gallery). Could you tell me what brand, model (and how many megapixels) your camera is, as well as what technique you used to get good photos? (Time of day, lighting, etc..)

    Thanks!

    DtoB
    While the photos I took were pretty accurate, they too made my KP look a little less severe. I have a cannon Powershot A640 10 megapixels- the lighting was just of my bathroom lights (and office at one point) with no flash and macro on.

    Well... I'm 9 days in or so. And the breakout hasn't peaked- there are now giant bumps all over my arms, legs and back. I'm breaking out in my armpit and other places which I've never had KP before. I'm the most red (nearly glow in the dark red) and the itchiest I've ever been. Some of the KP is oozing puss in places. Had one explode on my back. EWW

    So far this has been a very scary experience. I want the bugs to go away but I'm afraid that it will keep getting worse and not better. But I know that if I just keep taking the Seabuckthorn I should get better... or at least that's what I hear...


    When this is all over I think I'll make a new topic about the subject to better detail my KP journey as well as organize my pictures. (That is, If I come out of this with my KP gone... I hope! )

    Hopefully all this is normal and my body isn't just having a bad reaction to the seabuckthorn... I'm tempted to go get a microscope just to be sure.

    Anyone go through this yet? Really hoping to hear from people who have had similar experiences- I kind of feel alone and unsure


    Kristlyn




    "KP is no good. It's just a big no good."
    -A very important scientist

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    Registered User SirDuckles's Avatar
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    Re: 34 years later... cured - it was demodex parasite!!

    10th day now. Still looking pretty bad, maybe it's peaked? I'm not sure. All I know is I have huge bumps (Which look like bad acne- some have broken open) on my sides and back and in other places around my body- not to mention KP just about everywhere and in places it has never been before (See: Armpits) I look like a mess and I'm a little worried.

    Has anyone else gone through this besides me? I know the original poster has but they haven't replied in a while so... I just feel a bit alone... Just someone to share the experience with would be nice... and to know that this is all suppose to be happening...

    So far though, everything matches up with the original poster- so I'm pretty sure I have the demotox form of KP. It's just not easy to see your body get so bad in the hopes that it will better. I just want this whole thing over with! >.< If it cures my KP though, it'll have been totally worth it!

    I might post pictures again tonight

    Mood: Nervous, very very Nervous




    "KP is no good. It's just a big no good."
    -A very important scientist

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    Re: 34 years later... cured - it was demodex parasite!!

    SirDuckles,

    Don't feel alone. Even if I can't give you something to make the bumps go away, I am reading your post and sending you sympathy and support. On the plus side, if you know your KP is caused by demodex, you know how to get rid of it. (I'm assuming there is a remedy for demodex.) Most of us don't know what is causing our KP, so a remedy isn't easy.

    On the bright side (no pun intended), has OP given you whiter teeth?

    kebod

    video with how to test for demodex parasites:
    Demodex Solutions heals itching, acne, rosacea, swollen nose and other demodex related skin deseases

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    Re: 34 years later... cured - it was demodex parasite!!

    Has anyone been tested for demodex mites at a dermatologist's office? Next week i'll bring this up to her.

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    Re: 34 years later... cured - it was demodex parasite!!

    SirDuckles, you're very brave and very kind to follow through so diligently on this experiment - we all benefit from your efforts. With gratitude...

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    Re: 34 years later... cured - it was demodex parasite!!

    Sir Duckles,
    Hang in there! It sounds like it is really working. I think you can't expect the demodex to clear so fast after having KP for YEARS. It's only been 11 or so days, so try to stick it out for a few weeks. We are all rooting for you!

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    Re: 34 years later... cured - it was demodex parasite!!

    Thanks everyone for your support, it really means a lot to me. I have to admit I've been a little scared the past few days (possibly a little overreaction- I just didn't expect the reaction / breakout to be so strong!!) and just hearing from some of you has calmed my nerves dramatically.


    I wanted to comment on this post here:

    Quote Originally Posted by Charly.ec View Post
    hey everyone!

    i've been using SBT soap and body oil for about 2 months now. my reaction to it is exactly like pattirobb described. kp appeared in some places where i thought i didn't have kp (like the innerside of my arms, which were smooth before using the soap...) also on some days i get whitish spots on my face, it's not acne, it's more like a bit elevated skin, though not a pimple... my face doesn't really bother me as i am perfectly able to cover it up with some foundation. my kp HAS IMPROVED in these two months of using SBT products. i had pretty bad kp and the dots were furious RED, especially when i got out of the shower! in normal daylight the dots on my legs are now more pink/beige, but a lot less visible and seem to have reduced in size. i still have kp on my arms, but the redness has disappeared and the dots are smoother (you can only see them from really close), i even dared to wear a t-shirt a week back (haven't done that since .... erm .... ever? hehe). my upperlegs are almost dotfree, maybe in a few more months i'm able to wear a skirt who knows :-)
    what more can i say? ....
    I'm currently going through the same -exact- experience (itchy scalp, itchy body, red bumps in places I wouldn't expect)- but I wasn't sure about the red bumps until I read this again today.

    You see, a few days ago I noticed a really strong increase in the big red bumps- they were all over the underside of my arms and back. They really freaked me out because I had never seen anything like it and it looks more like acne than KP, but at the same time it's not quite acne. The post above best describes it!

    Well, my initial thought when I first really started noticing them all over my body was that I was having an allergic reaction to the Sea BuckThorn drink, or possibly the soap- as the bumps just don't look completely like acne or KP. I wasn't sure whether to keep going or to stop and after calling my parents wondering what they thought they in turn freaked out and assumed it was hives, making me panic further.

    But then I started wiki-ing. The large red bumps I found all over my body definitely contained pus- and hives don't contain any pus. Pus is a sign of a bacterial infection- which I can only guess is coming from the dead mites. And then after re-reading the post above I was assured that it is definitely not an allergic reaction as what the poster above describes is exactly what I have right now. I had just simply never seen anything like this happen to my skin!

    The past few days have certainly been a mixed feeling of relief and disgust!


    Today I think I also noticed some of the KP fading on my lower arm and lower back. My boyfriend and I just kept noticing my one arm all day and how it wasn't as bumpy or red. Hopefully it won't break out again but I think I can finally see a glimmer of improvement. My upper arms on the other hand, they are still a battlefield. They are almost entirely red, bumpy and covered in the large red acne bumps. Really, a total mess. I had absolutely no clue how bad it was going to get. But if this allows me to wear short sleeves for the rest of my life, so be it! And with my lower arms seemingly getting better, I much more confident in continuing.

    So... I think this just might work. I'll of course continue now that I know it's not hives and I'm a little less skeptical now that this might actually work! You could say I'm even a little excited, but still nervous as I continue to break out all over the place >.<


    Will keep you all updated! Thanks again everyone!

    -Kristlyn




    "KP is no good. It's just a big no good."
    -A very important scientist

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    Contributing Member bunnyday's Avatar
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    Re: 34 years later... cured - it was demodex parasite!!

    Duckles- Your reaction sounds very much like the reaction I had. I did not try sea buckthorn till much later but the Oil Pulling gave me big hard welts and boil-like things starting at my face and neck and gradually working down my body. Coconut Oil gave me a faster and more severe reaction and I just couldn't take it so I backed off to sunflower oil but if you can push thru more power to you. (I also think I needed more EFAs at the time) It took me a couple months at least but I think someone younger might have a quicker healing time. I _did_ find Tea Tree Oil helped with the itching and inflammation of the welts a lot. I'd put a couple drops on the area of the breakout and rub it in. TTO is a good antimicrobial - probably test it somewhere first to make sure you don't react to it. Kebod alerted me to the fact that as with most things, some small percentage of people are allergic to it. I also started a sugar and vinegar scrub before showering about a month into OP. It also helped with comfort. Just don't scrub hard on welts but I could put a paste of it on those areas. It felt like doing that helped move the welts through faster, maybe just by sloughing off the top layers of dead skin. When I finally did try SeaBuck oil topically I did not have a major welt reaction. I can neither confirm nor deny if I had an over-abundance of demodex mites but it seems possible according to my personal symptoms. It seems like the kind of microbe that one never totally gets rid since it's so common of but that we can keep the population in control by doing the right stuff for our bodies. I would also recommend making sure you're getting plenty of beta-carotene and vitamin E (but not too much) since they are good skin support vitamins. What Sea buckthorn drink did you purchase? I've only found one and it was blended with other juices. I think the sea buckthorn tastes similar to dates which I like. Congratulations on starting this process - I bet you'll be done rapidl. - bd

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    Re: 34 years later... cured - it was demodex parasite!!

    Well I was supposed to have picked up the SBT bar last week, never did. Had I my own paycheck, I would have. Anyways long story short - Mum didn't buy the SBT soap because it was 'too expensive'. 18$ a bar? Eek. Today I sat her down and showed her my two arms, the two arms I'm always hiding under sweatshirts. I reminded her of how bad my KP was - intense redness and bumps over every inch of my arm, now spreading to the UNDERSIDE of my arms, along with on my legs, even a little on my back now - I've deffinitely noticed it pick up great speed in the past year, and I have a feeling that its mites causing it. She said she'd try looking around at different whole foods stores for different forms of SBT next week while she's off on holidays. I thanked her.
    I've been meaning to get a job so I can pay for all these things - but I'm constantly worried that I'll have to wear short sleeved shirts at work and I would be mortified. I have the worst case of KP i've seen in anyone my age, in all my family. I think I'll take some before and after pictures while I'm using SBT products..

    Bunnyday mentioned the process might be faster for someone younger, with KP just as severe. Well, I believe I could be your guinea pig for that, BD.

    Christmas is coming up soon and I'm going to need some money to pay for gifts, so I'm hoping I can find a job soon - and hopefully one with a uniform that includes long sleeved shirts. I've been thinking about working at this small coffee shop in the mall, i'd like that alot.. but if I have to wear a short sleeved shirt

    God help me.

    EDIT: Does anyone have any recommendations as far as WHAT products I could try? Should I try soap? Should I try a drink? Capsules? Topical oil? I'll post in this thread again when I've added before pictures

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    Contributing Member bunnyday's Avatar
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    Re: 34 years later... cured - it was demodex parasite!!

    Duckles - I almost forgot: you might want to soak in an epsom salt bath a couple times a week while the welts are working out. I wish I had done that when I was having the horrible breakout. Or you can follow the directions on a box or bag of epsom salts to make a compress to put on an inflamed area. Epsom salts are usually easily available at a drugstore or target or such. A big bag should only be a couple of bucks. Don't be fooled by many of the more expensive "salt baths" as they are probably mostly overpriced epsom salts.

    Magnesium sulfate - Wikipedia, the free encyclopedia

    Epsom Salts are magnesium sulfate and the magnesium draws fluids thru tissues - it's commonly used for those hot therapeutic baths for athletes' sprains. the fluid drawing helps pull pus and waste out. It tends to reduce inflammation/redness too. - bd

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    Contributing Member bunnyday's Avatar
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    What color and brand is your sea buckthorn soap?

    Anyone who has tried the soap would you please post the Brand of the soap? Also what color is it?

    Sea buckthorn oil (SBO) is VERY orange, yello-orange to red-orange. Even a small drop contains a LOT of color.

    The soap sample I tried a few months ago was a bar of white face doctor soap. It was not great. As I became familiar with sea buckthorn oil, I figure the face doctor brand has very little SBO hence not much orange coloration, not even pink or a little yellow or peachish!

    A few people have said they've tried "the soap" but I have no idea which one. I am still skeptical that the soap alone would do a substantial job of reducing an overgrowth of mites. In general, I don't think soaps are great KP treatments since they get rinsed off. The oil by itself is good for healing cuts, cold sores, cuts, scars, etc... on me. Very good.

    In contrast, I have used Burt's Bees Carrot Oil soap this past summer for when I needed to scrub some dirt or manure off. As a contrast, that soap is ORANGE. Its suds are orangish. It smells like carrots. It does seem nice to my skin, probably all the beta-carotenes. you KNOW it has carrot oil in it which must be hard to get cause how oily are carrots? sea buckthorn is quite oily and yet why isn't the soap orangey and smelling like the fruit?

    If your SB soap is not orange and or does not smell like sea buckthorn (kind of like dates or a musty apricot/prunish smell) it probably doesn't have much SBO in it. That would be my best guess at this point.

    I think using an SBO based body oil would be a better investment. Or buying some SBO to add into your usual body oil.

    I did try the weleda body oil which may be linked here:
    http://www.keratosispilaris.org/gene...html#post29151

    I bought it from vitacost. It's very nice stuff and has other ingredients including a natural parasite killer (I forget the name but if you look up each ingredient you'll find the one, benzene something or other or something like that). I am thinking of using it again this winter as I'm heading into the coldest driest part of the year here and the Weleda stuff is pretty THICK so may help protect my skin against the cold - I hope.

    I do take SBO, one capsule in the AM one in the PM. As I may have said before, I make no claims about it killing parasites BUT I got faster results in improved skin tone and KP reduction when I started taking it. More so than with just OP and Flax oil and spirulina supplement (those things I started for sinus and joint health actually. Aid with my skin has been a pleasant side effect of my original pursuit.) alright, that's my morning weigh-in. - bd

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    Re: 34 years later... cured - it was demodex parasite!!

    I have begun treating myself for the demodex mite.

    I started 3 days ago by using Head and Shoulders intensive treatment shampoo as a body cleanser. It contains 1% selenium sulfide and cost me $3.99 for the bottle. I am also using the generic equivalent of NIX for lice, 1% permethrin lotion (cream rinse)(about $10.00 for 2 oz).

    I have noticed an immediate diffrence in my skin. I hope it is due to my treatment.

    I recently had a bad breakout on my upper and lower arms, upper and lower legs, face, neck, butt and a little on my abdomen. I had many closed, filled bumps all over. My bumps now seem to be drying out and purging it from my skin. I have a small white substance coming out of my pores. I think I should be able to scrub it off.

    If this continues to help me, I will need to treat my entire family and all our bedding, furniture and carpets, etc...

    I was diagnosed with KP at 23 years old and I'm now 37.

    (after researching Demodex, I found they use a sulphur treatment for pets and humans. in addtiona they sometimes use anti-parasite treatments on humans. Usually 5% permethrin by perscription called elimite for scabies)

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    Re: 34 years later... cured - it was demodex parasite!!

    I started using the Seabuckthorn soap and oil. My KP is limited to my arms and have never had it anywhere else. I have to say that you are all freaking me out a little saying that it started appearing all over your body! I have been washing with it for about 1 week and 1/2 and my arms have started itching really bad. It is driving me a bit crazy! It sounds like that is what everyone is experiencing, but I am totally freaked out by talk of it spreading. I will keep checking back to see how you are all progressing and will give updates on my own progress. Wish you all the best

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