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Old 05-26-2006, 04:36 PM
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Smile Asking Oprah for help...

Hi there this might seem like a long shot but i am willing to try anything so that there is new research and perhaps they can find a cure. When dermatoligists know that you have to much keratin that causes your KP is it so hard to find something that stops the keratin from creaing/building. (sorry my english is not the best but I hope you know what i mean.)
So today I wrote to Oprah Winfrey about KP and asked if she could contact researchers or medical companies or if she could maybe talk about this problem on her show just to get it out in the open. If someone else would write and asked the same maybe it could work, I know it is a long shot but there is nothing to loose. Maybe it is money that is the question and when big nedical companies realises that there is also money to make by getting a cure or treatment maybe then we have a shot.
So long!!!!!
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Old 05-28-2006, 05:15 AM
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Hi agan. i am supriced that not more people have given some thoughts about trying to contact he public service as tv or medicalcompanys to try and meake them do more research about KP i hope it is because its the weekend and that more people are intressted in trying to actually do something to help all of us and especially our children.
Hope to hear your thougts.
I have a contact at Eucerin here in Sweden and we have had some mail contact and talked about KP and she is going to contact there lab groups and try and talk to Eucerin people in other countries. Maybe tou can try and contact other medical or cream compnaies in the countires where you live. OK see ya.
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Old 07-18-2006, 11:08 PM
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Alrighty I wrote to Oprah too! Thanks for the tip, and the link!!
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