Petition to Derms around the Country and World

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Originally posted by jazzy

I was so happy to read that others have this idea. I've been e-mailing various derms and Medical Schools for awhile, to no avail.
There is power in numbers and I think we should absolutely send something around until a doctor or researcher DOES take the initiative.
It's ridiculous that KP sufferers can't even feel comfortable wearing tank tops, short sleeve shirts and shorts, COME ON!! We only get ONE set of skin, it's time to band together and get our concerns out there! I'd like to know some good ways to go about doing this, sending out an e-mail to "sign", with various comments and suggestions?
Please post your suggestions.................

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Originally posted by Alicia

Can you list some website addresses so we can all email-like you said power in numbers!

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Originally posted by miss

I sent an email to the Coalition for the Advancement of Medical Research - I'll let you know what happens.

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Originally posted by Iteki

if somone wants to start a petition you can host it for free at www.petitiononline.com

I would suggest first deciding together on a suitable text here in the forum, and then two people take responsibility for being the petition initiators. These should preferably be people in a position to reply to emailed questions if they should arise. Just whatever you do, dont race off 15 people now and start 15 different petitions about KP as you said, unity in numbers.