KP update

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Originally posted by uk helen

it's been a while since I posted. Maybe some people will remember that I had a pretty bad oxy reaction and got it all infected (gross and looked horrendous, much worse than kp). I had to take antibiotics and for about a week after the infection cleared I had great skin! I would no way recommend what I did, oxy was just too much for my very fair skin. The week of great skin was a dream, I had never ever had skin like that before, smooth and almost like normal. I knew it wouldn't last, it was i think because i had lost the very top layer of skin, similar to when you go in the sun and get burned I guess. After a week I noticed the first fresh bumps and now I'm back to my nearly normal state. I am convinced that sulphur soap helps, not so convinced by MSM and finally, as a result of this board, am beginning to accept that 1) I'm not destined to have perfect superstar smooth skin on my arms 2)lovely skin on arms really is great but not life alteringly so, everybody loved me just the same either way and 3) I am not alone having this, even though it feels like it all the time - thank you all the genuine posters here, you've helped me so much.I have suffered from anorexia for many years and have been in treatment for four years and thankfully have got my weight and life pretty much back to normal. In addition, just after Christmas I suffered really badly from cystitis (again)and I realise that there are so many other more painful, desparate, conditions out there where it effects people's ability to work, to live any kind of normal life and can even be terminal - I'm sure most of us have expereinced cancer in a friend,colleague or loved one or even ourselves. No doubt kp has left me feeling depressed, uncomfortable and with a low self esteem but maybe it takes something worse to bring it into perspective. Our condition is unusual and misunderstood but here is an example of what this support board has done for me. I discussed my condition with a close friend this weekend and as I described it I said "we have a genetic disorder" she asked who I meant by "we" and i guess I meant us, our message group! So we have a screwed up individual crying out through our board - that doesn't bother me too much, I feel sorry for them. What is important, far more than a cure is our support for each other. Knowing I am not alone has alleviated my worries so much. Thank you everyone, especially hopeful and uk louie, you cheered me through a rough patch. Keep going everyone love Helen xx

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Originally posted by hopeful

hello united kingdom helen!! i am so glad that you (and your arms) are feeling better. and you posted such a nice message, it was really uplifting to read. this board has definitely made all of us feel not so alone and that is a great thing. and as for your assessment of the sulfur soap - you are right. it is doing wonders for me. the longer you use it, the better your skin looks, so keep on going! hopefully it will work as well for you as it has for me. CHEERS!

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Originally posted by Me Too

Yes, thank you for your positive message! I scratched so obsessively at the KP on my arms, legs, behind, etc that I thought I had OCD. I was even on anti-depressants for the OCD because I was so hateful of myself and my horrible skin. I would scratch at my arms and legs for 1 - 3 hours until I was covered in sores. I too have finally found some peace with my KP. And I'm off all the meds. So Thanks!!

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Originally posted by Mitch

Been there, done that! Thank you!