worried

dan82 · #16 05-09-2008, 12:10 PM

Cool! Thanks for the good info!

So it sounds like if I were to get the PDL treatment, I would still expect my face to get very red in the areas that the KPRF had affected, though it would not be red (or as red) during "non-flare-up" times? Just to make sure we're on the same page, my face only gets really, really red (in extreme situations, mentioned in a previous post) on the parts of my face (cheeks) affected by KPRF that are always a littlered, even in non-extreme situations - in other words, it's not like my whole face turns red from being embarrassed, which is what I picture w/ the pure "flushing/blushing" people I've read about. Was it the same for you as what I've described for myself?

I guess my original thoughts were that "KPRF is KPRF", so that using the PDL treatment to zap away the redness on my face would keep the extreme, bright redness from showing, as well - i.e. whenever I exercise, go in extreme heat/cold, etc.

I must be incorrect in my thinking here, but I am picturing Paxil as something that stops flushing/blushing only for those people for whom it comes about due to anxiety issues (e.g. public speaking)?? Don't get me wrong, my cheeks do tend to get really red on the KPRF areas when I speak in public, but again I want to make sure we're on the same page in that they also get really red when I am not "anxious"/embarrased/etc - such as, just when I go running or lift weights or something like that. Paxil helps in those situations (which have nothing to do w/ anxiety), also?? If so, that makes the paxil treatment seem more physiological than mental (or maybe some combination of both).

Also, do you guys tend to use the generic Paxil (Paroxetine), since it's a ton cheaper?

Sorry again for all of the questions, but I really appreciate your help since it seems like you're a person who was once in the exact same situation as me, who has now virtually "cured" his condition! By the way, not to sound weird, but do you happen to have any before & after photos?

Thanks again,
Dan

jason1901 · #17 05-09-2008, 03:36 PM

Quote:

Originally Posted by dan82

Cool! Thanks for the good info!

So it sounds like if I were to get the PDL treatment, I would still expect my face to get very red in the areas that the KPRF had affected, though it would not be red (or as red) during "non-flare-up" times? Just to make sure we're on the same page, my face only gets really, really red (in extreme situations, mentioned in a previous post) on the parts of my face (cheeks) affected by KPRF that are always a littlered, even in non-extreme situations - in other words, it's not like my whole face turns red from being embarrassed, which is what I picture w/ the pure "flushing/blushing" people I've read about. Was it the same for you as what I've described for myself?

I guess my original thoughts were that "KPRF is KPRF", so that using the PDL treatment to zap away the redness on my face would keep the extreme, bright redness from showing, as well - i.e. whenever I exercise, go in extreme heat/cold, etc.

I must be incorrect in my thinking here, but I am picturing Paxil as something that stops flushing/blushing only for those people for whom it comes about due to anxiety issues (e.g. public speaking)?? Don't get me wrong, my cheeks do tend to get really red on the KPRF areas when I speak in public, but again I want to make sure we're on the same page in that they also get really red when I am not "anxious"/embarrased/etc - such as, just when I go running or lift weights or something like that. Paxil helps in those situations (which have nothing to do w/ anxiety), also?? If so, that makes the paxil treatment seem more physiological than mental (or maybe some combination of both).

Also, do you guys tend to use the generic Paxil (Paroxetine), since it's a ton cheaper?

Sorry again for all of the questions, but I really appreciate your help since it seems like you're a person who was once in the exact same situation as me, who has now virtually "cured" his condition! By the way, not to sound weird, but do you happen to have any before & after photos?

Thanks again,
Dan

OK, its not 1 PDL treatment and thats it, its more like 2-8 treatments, depending. I had 5 so far and another later in MAY, PDL treats the redness of KPRF, paxil stoped the flushing/blushing from whatever the cause is I dont know exactly but my guess is anxiety from always worring about the redness for years and day and night, its a little obsessive it could even be OCD obsessive conpulsive disorder. not to mention KPRF has to do with affecting the blood vessels in the highly vascularized face area (cheeks) different from rosacea, but in a way similar too. but kprf makes people depressed also, and paxil treats ALL of that! and it stopped my flushing/blushing so Im better for it. not to mention flushing/blushing is mainly dilation of blood vessels and paxil seems to keep them from dialatiing, when hot or cold, embarrased, public speaking etc...

well paxil works on ur serentonin, which is also where anxiety comes from, so if it stops flushing/blushing and u or whoever flushes/blushes more than normal and it really bothers you than there must be some form of anxiety in u. I never felt I had anxiety, but could not control the flush/blush, and when it happened is when I would feel botherd or anxiety!

yes, I use Paroxetine, no insurance plans cover paxil anymore for a while, and to pay full price for a brand name is outrageous.

DumbOut · #18 05-09-2008, 08:03 PM

Yea but that's pretty much the same question me and Dan have

Does it stop the flushing/blushing of running, exercising, lifting weights or just doing something streneous?

I take 5-HTP and it helps a little
I take 100mg

jason1901 · #19 05-09-2008, 11:25 PM

yes it does!

dont think its not normal to flush/blush a little when lifting weights or running because it is normal, because ur pushing ur body to a limit and exerting urself.
running,exercising,lifting weights is doing soemthing strenous!

if ur going to take paxil, drop the 5-htp, dont ask me why, but its better to stick with 1 med. no need for 2, even if it is a supplement.

DumbOut · #20 05-10-2008, 12:26 PM

Yes I understand it is definetely normal to flush/blush when you lift
Everyone does

But when I lift and I am exerting myself hard sometimes it starts to stay

Like normally when you lift, you get red then it goes away
But what I'm saying is when I go hard that blush will stay and it usually starts on the far right side of my face kinda like if I had long sideburns it would only be there
It's like a long red line that will start to appear only on that side of the face and as I keep going harder it will start spreading and eventually my face will be red.

Anyways lately its been pretty good
I went out to a restaurant after the gym wearing sweatpants a shirt and a sweatshirt and I didnt really blush at all
It was amazing cuz I would see people I didnt see in awhile and I would be fine. I was more social which I know the 5-HTP is definetely helping with. Towards the end I started to get a little red not anything like bad tho. I definetely believe something like 5-HTP or Paxil or anything that deals with your serontonin levels has a humonguos impact on your KPRF. I might try Paxil if I can get a derm to prescribe it to me but for the meantime the 5-HTP helps but I used to think Jason was an idiot for saying stuff like Paxil or any med would help but believe me it does.
It's got a lot to do with you mentally, the first time you blush you immediately start having bad thoughts and thats where isolation and anti-social symptons happens

jason1901 · #21 05-11-2008, 12:05 AM

you thought I was an idiot

but you still tried a supplement (5htp) for the same effect as paxil. I felt I made a breakthrough and heard alot of sh#t and asked a ton of questions, but I guess it was worth while since me and others like KHRISSY3000 and ASH213 have recovered from something that was long over due! flushing/blushing no more! and I only mentioned Paxil for KPRF, someone edited the title of my post it should read flushing/blushing cure with Paxil, not lexapro and whatever the other one is... and also note that paxil is the most effective for anxiety. (Paroxetine- generic paxil)

and remember u dont NEED a dermatologist for a prescription of paxil, but u do need a MD.

dmw · #22 07-22-2008, 01:35 AM

okay so im having pdl treatment next week. i had a consultation w the derm that does laser treatments and she said i have a rather mild case of kprf and i will only need one $150 treatment. i dont know much about lasers and stuff but that sounds kind of suspicious to me because i heard that treatments are usually more expensive and you need more than one. im not really expecting it to work but i guess at $150 a treatment i dont have that much to lose

dmw · #23 07-28-2008, 03:51 AM

anyone?? my treatment is in 2 days

kebod · #24 07-29-2008, 02:33 PM

dmw,

It's worth trying one treatment to see if it helps. If you need to get an idea on if the price is right, you could call another derm and ask over the phone what their cost is for the same procedure. Good luck and let us know how it goes.

kebod

jason1901 · #25 07-31-2008, 12:15 AM

PDL. settings for good results:

10 mm spot size : (its the size of the crystal head of the laser) there are a few different sizes and 10mm covers a larger area faster!

joules: 7.0 setting

mild energy setting

also ask to stack the pulses.

dmw · #26 08-01-2008, 08:29 PM

well i had my treatment 3 days ago. turrns out they didnt have a pdl laser, only ipl. my derm said she was pretty sure that one treatment would take care of it and i should see results in a couple days. it hurt really bad and my face was beet red for the first day. the 2nd day the redness was back to normal and i didnt see any improvement, but i kept getting flushing attacks really bad. today is the 3rd day and i havent had any flushing attacks but no improvement on the redness either. im starting to think it was all a scam, i knew it sounded too good to be true. if i dont see any improvement in the next couple of days then i guess i got screwed out of $150 and im going to have to find a derm in the area that does pdl

jason1901 · #27 08-05-2008, 09:15 PM

Quote:

Originally Posted by dmw

well i had my treatment 3 days ago. turrns out they didnt have a pdl laser, only ipl. my derm said she was pretty sure that one treatment would take care of it and i should see results in a couple days. it hurt really bad and my face was beet red for the first day. the 2nd day the redness was back to normal and i didnt see any improvement, but i kept getting flushing attacks really bad. today is the 3rd day and i havent had any flushing attacks but no improvement on the redness either. im starting to think it was all a scam, i knew it sounded too good to be true. if i dont see any improvement in the next couple of days then i guess i got screwed out of $150 and im going to have to find a derm in the area that does pdl

any derm that tells u 1PDL or 1IPL treatment will take care of it in 1 treatment is either not a cosmetic dermatologist or is out to get a quick fee! Ive had 6 PDL treatments once a month for 6 months at settings listed above with extradorinary results, great.

go and find a reputable dermatoligist that does general and cosmetic dermtology, as I said before if they have both PDL and IPL then its a good sign, because those machines are way exspensive and a derm who does cosmetics will use them often. Ive listed settings above in other post for good results with PDL, u need to find a good derm.

dmw · #28 08-17-2008, 07:18 AM

just made an appointment with a more experienced derm in a larger city nearby. im going to have my 1st pdl treatment with the vbeam laser in 3 weeks

dmw · #29 09-11-2008, 05:44 PM

slight change of plans... i went to my new derm today and he said he has a new ipl machine that is supposed to work better than the v-beam (pdl). i told him i was really unsure about it because i had an ipl treatment with virtually no results, so we decided to just do a small test area with the v-beam. he did 3 small dots with a 12, 11, and 10 joule setting (a lot higher than what is reccomended but he wanted to see how my skin would react since my redness is very prominent) and a small box on my cheek with the 7 joule setting as jason reccomended. the 12 11 and 10 dots bruised immediately and the little box with the 7 joules turned pure white soon after he did it. i have another appointment in a month to discuss the results w my derm and decide what laser/setting to use from there. but even though its only been a few hours im pretty pleased with the pdl test results

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