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veinwave

This is a discussion on veinwave within the KPRF (Rubra Faceii / Red Face / Flushing & Blushing forums, part of the Other KP Topics category; has anyone heard of this. supposedly it works, killing the blood vessels and getting rid of a lot of the ...

 
 
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  #1  
Old 11-09-2004, 06:42 PM
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veinwave

has anyone heard of this. supposedly it works, killing the blood vessels and getting rid of a lot of the redness in the cheeks. im flying to the u.k. to get 5 treatments. any thoughts???
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Old 11-11-2004, 03:26 AM
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Good luck! The treatment looked really impressive on the website, but I have not heard anything about it. There is one picture on the website of a man with a red face that improved quite a bit, I can only assume its was red for reasons similar to us. Let us know how it goes.
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Old 11-12-2004, 01:20 PM
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I first went to see the originiator of Veinwave, Brian Newman, a couple of years ago. At the time he said that it wasn't worth treating my kind of redness because it wouldn't respond. The kind of redness that responds well is caused by visible surface vessels, but generalised, deeper redness is much harder to treat.

Recently, Ellie posted to this board about how effective Veinwave had been for her son who also had KPRF. I believe he has now had about 9 treatments.

So I went back to see Brian Newman and have now had 4 extensive test patches in the most affected area and I'm afraid there hasn't been any improvement. According to Mr Newman, I'm the first case he's seen which hasn't improved at all but I'm not sure if that can be true. He thinks it may be because I previously had so many laser treatments.

Anyway, it didn't work for me but it has worked for someone else on this board so it may be worth considering.

Rick
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Old 11-12-2004, 01:46 PM
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Rick

Rick, yeah that Ellie person was the one who told me about it also. She has dissappeared thoug after chatting with her 3 or 4 times. I am beginning to get suspicious. What kind of redness do you have? Cheeks, ears? how red? all the time? Flushing? And the impression i got from her was he had 2 treatments not 9 ???? take care, how old are you?
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Old 11-12-2004, 04:32 PM
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My problem has always been the classic KPRF mixture of permanent redness and flushing. The worst redness is on the side of the face rather than at the front.

I don't have any doubts that Ellie is genuine. Mr Newman himself told me that her son had had something like 8-9 treatments in total but had improved from each one.

Perhaps the reason you haven't heard from her recently is that once people don't have a problem any more, they don't come back here looking for answers.

Good luck to her if it worked for her son - I just wish I understood why it didn't work for me. Still, I had previously had something like 70 laser treatments so it wasn't a big surprise.

I'm sure that future generations of lasers will have no problem eradicating this problem in a couple of sessions, but in the meantime we're left with technologies like Veinwave which may be worth trying if you have the time and money.

Rick
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Old 11-21-2004, 06:19 PM
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RE VEINWAVE

THANKS A LOT RICK FOR NOT DOUBTING ME OVER THE VEINWAVE TREATMENT,, AND SORRY THAT IT HASNT HELPED U MUCH, BUT I REMEMBER DR NEWMAN ASKING MY SON HAS HE HAD LASER TREATMENT DONE AT HIS 1ST CONSULTATION,,WHICH MY SON HASNT,, BUT HE WERE WAITING TO HAVE LASER,, BUT WITH HIM WAITING OVER 18 MONTHS AND STILL NO WORD,,I DECIDED TO LOOK FOR OTHER TREATMENTS,, AND THAT IS WHERE I FOUND DR NEWMAN AND THE VEINWAVE TREATMENT,, YES MY SON IS DOING VERY GOOD WITH HIS TREATMENTS,,STILL HAVING THE TREATMENTS BUT NOT AS FREQUENT NOW,,AND HIS REDNESS ISNT ANYTHING NOW LIKE IT USED TO BE,, HE MAY JUST GET THE ODD FLUSH,,WHERE AS BEFORE IT TOOK HOURS TO GO AWAY,, NOW SAY IN 5-10 MINS IT HAS GONE,,WE R VERY GRATEFULL TO DR NEWMAN AS HE HAS HELPED R SON SO MUCH,,MY SON IS A DIFFERENT MAN NOW,, SO MUCH MORE CONFIDANT,,HAPPIER,,AND MORE OUTGOING,, I JUST HOPE ALL THE PPL ON THE FORUM CAN FIND THE HELP AND TREATMENT THEY R LOOKING FOR AND THEY DESERVE.CAUSE I KNOW JUST TOO WLL HOW THIS PROBLEM AFFECTS LIFES,, BEST WISHES TO U ALL,,TAKE CARE,LOVE ELLIE,
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Old 11-23-2004, 11:08 AM
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veinwave

hi everyone..I havent postyed in a while..major computer problems, but I'm back....I never heard of veinwave, but my son who is 16 and has red cheeks(one Derm said it was uerythema ooporogynes...2 other ones said no) and it really bother s him at times..he gets sick and tired of everyone always asking him why his face is so red!!!! I live in NY and have never heard of veinwave, but am interested if there is any good results....I always thought the way to go was pulse dye laser..is that still the recommended treatment( if there is any treatment) I have put off getting my son the laser cause it seems like the results are so varied..I figured the longer we wait maybe something miraculous will come around....Robin
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Old 11-24-2004, 04:56 PM
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robin

Hey Robin,
I live in Philadelphia, and have what your son has I think. Im 27 and have had it since I was about 13. Are your sons ears red also? Is he pale in the morning?
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Old 11-24-2004, 10:23 PM
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my sons ears are also red..and his chin...his face is red in the morning, but not as red as in the afternoon....Have you had any laser???? I was told that pulse dye laser was the laser of choice..I was told by the dermatologist that thought he had uleryuthema oophorogynes to take him to Boston Childrens hospital for evaluation for laser...at the time he was 13 and that sounded drastic to me!....There is so much contradictory information..I just want something that will work for him. Some people on this site say the laser works, and others have little to no benefits from it...hopefully we will have more people respond to this thread...Robin
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Old 11-27-2004, 02:43 PM
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photoderm

Yes, I ve had photoderm done twice with Dr. Bitter. NO results whatsoever. It is extremely frustrating! Well take care.
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Old 11-27-2004, 05:18 PM
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What is photoderm??Is it a certain laser???...jusy wish there was some decent treatment out there..AAAA
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Old 11-28-2004, 08:32 AM
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Photoderm is useless for this condition and I haven't heard of a single person who has had any success with it at all. Sometimes it improves Rosacea, but KPRF is not the same. Photoderm is not actually a true laser but an IPL (Intensed Pulsed Light) device and can improve skin texture and collagen thickness etc.
I also travelled to Dr Bitter (senior) for 5 Photoderm sessions but had no results.

I have heard that the V-Star laser has produced quite good results for somebody with this condition but it didn't work for me either.

Unfortunately there is no foolproof treatment as yet but I'm sure there will be much better results with the next generation of lasers.

Rick
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Old 12-25-2004, 12:36 PM
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There is some treatment for flushing listed online by a clinic in san antonio texas, it says something about hyperhydrosis and the removal of a nerve in the rib area to prevent the flushing of the upper body. I understand it can have some side effects from the site. Maybe if you do a search on google u can find the site. Good luck.
And the vein wave... if u remove those vessels wouldnt it effect long term skin elasticity/growth?
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Old 02-11-2005, 05:58 PM
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VIENWAVE

HI THERE
I HAVENT POSTED FOR SOME WHILE,, AND NO VIENWAVE DOESNT AFFECT THE SKIN ELASTICITY R GROWTH,,ACTUALLY IT MAKES THE SKIN BETTER,,NEW SKIN GROWS AFTER TREATMENT, MY SON IS DUE FOR ANOTHER VIENWAVE SESSION SHORTLY,, AND I CAN SAY HIS FACIAL REDNESS ISNT ANYTHING LIKE IT WERE BEFORE HE STARTED THIS TREATMENT,ONCE AGAIN WE R SO THANKFULL WE FOUND DR NEWMAN,,HES A CARING HONEST DR,, AND IF HE DOES NOT THINK THE TREATMENT WONT HELP CERTAIN PROBLEMS,,HE WILL TELL U SO,,SO U KNOW HES NOT A DR TO JUST TAKE UR MONEY AND TREAT WHAT CANT BE TREATED,,THE VIENWAVE SITE DOESNT MENTION KEROTOSIS ,,BUT IT IS FOR THIS TREATMENT AS WELL AS OTHER CONDITIONS,,, UP TO NOW I THINK DR NEWMAN IS TREATING APPROX 10 PPL WITH THE SAME COMPLAINT,, ALL TAKE CARE, BEST WISHES,, ELLIE
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Old 02-14-2005, 01:19 AM
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veinwave

Ellie, glad to hear that your son is having positive results..How old is he? and how red were his cheeks??? I live in upstate New York, and when I emailed the people from veinwave, they told me that this type of treatment is only available in England at this time!! Are you in England?..
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