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OMG I have KPRF also

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Old 03-18-2008, 01:14 PM
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OMG I have KPRF also

Hi all,
I'm new.. My derm tell me that I have keratosis pilaris rubra faceii. I thought that I was the only but it seems that I'm wrong..
I flush with cold,hot,wind,stress, emotions...
I have tried a lot of creams/gels etc but nothing seems that has worked.. Sometimes I have burning sensations also.. This thing it is very very annoying..
I have read that there is no effective cure.. is it true?

Another question: Is KPRF very rare? I have not seen another person like me in all my life..
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  #2  
Old 03-18-2008, 08:40 PM
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Re: OMG I have KPRF also

Yea thats true there is no effective cure yet.. which really sucks, I don't know how rare it is, derms say its very rare but I live in a really dry city and I see a person with KPRF at least once a week. Maybe that could be a cause, I'm from Calgary Alberta, Canada.
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Old 03-18-2008, 11:22 PM
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Re: OMG I have KPRF also

I have KPRF too, and I live in Montana. Its kind of funny, because Ive noticed that the redness doesnt appear as much when I eliminate caffeinated beverages. I also just use (odd as this may sound) cortaid to moisturize my face. It acts as a sort of moisturizer but its not as harsh on your skin. I do definetly see a difference since Ive been combining those two things.. my face doesnt turn red or burn randomly anymore.
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Old 03-19-2008, 01:29 AM
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Re: OMG I have KPRF also

Quote:
Originally Posted by pumpkinsteen View Post
I have KPRF too, and I live in Montana. Its kind of funny, because Ive noticed that the redness doesnt appear as much when I eliminate caffeinated beverages. I also just use (odd as this may sound) cortaid to moisturize my face. It acts as a sort of moisturizer but its not as harsh on your skin. I do definetly see a difference since Ive been combining those two things.. my face doesnt turn red or burn randomly anymore.
I believe the reason to that would be that caffeine is a vasoconstrictor and it increases heart rate resulting in more blood flow to the face, and by the way I like your picture your hot.
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Old 03-19-2008, 08:02 AM
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Re: OMG I have KPRF also

Hi, thx 4 the answers. I'm from Italy. No cure... how I thought :[

cortaid is not a hydrocortison? I have read that it is not good because it causes steroid rosacea..
I drink coffee rarely..

Dirk.. very strange to see people like you every week when I never have seen 1

ps, sorry for my english..
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Old 03-24-2008, 09:47 PM
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Re: OMG I have KPRF also

I use cortaid.. the cream.. I think it works really well. People have been complimenting me about how clear my face has been looking. My face is hardly red anymore.. maybe its because Ive grown up, and have grown out of it or something... My doctor actually advised me to use the cortaid creams awhile back ago.. I like it mainly because its not so harsh on my skin, and my facial skin is extremely soft now. I am also really REALLY white.. so redness shows up more on my face. I know different things work for different people.. so my best advice is to just kind of experiment, but make sure you do a lot of research before you do that. I have tried so many different things now.. There have been some things that have just been horrible!
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Old 03-24-2008, 09:49 PM
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Re: OMG I have KPRF also

Quote:
Originally Posted by dirk View Post
I believe the reason to that would be that caffeine is a vasoconstrictor and it increases heart rate resulting in more blood flow to the face, and by the way I like your picture your hot.
Thank you for the compliment!
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Old 03-25-2008, 03:41 PM
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Re: OMG I have KPRF also

hey there. i have mild kprf...i think! i went to a derm and he said its either keratosis pilaris or seboherroic dermatitis. but since i came on here i realise its kprf. anyway, i used to think i was a one off too, i never saw anybody else with hardly any eyebrow hair and pink cheeks and eyebrows. its lessoned slightly since ive reached my late 20s but still noticeable. ive tried all sorts of steroid creams, shampoos, the eucerin redness relief kit(dont bother). the cream im using at the moment is called freederm and theres definate improvement after only a few days..give it a try
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Old 03-25-2008, 05:53 PM
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Re: OMG I have KPRF also

Hi - you may already know, but the eyebrow thing is called ulerythema ophryogenes (UO). Like KPRF it is a keritinization disorder. It can occur with KPRF but can occur separate from it.

UO is reasonably rare. If you want to find out more about it check the forum devoted to it on ths site.

Regards
Anne
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Old 03-26-2008, 08:21 PM
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Re: OMG I have KPRF also

Quote:
Originally Posted by rorschach View Post
hey there. i have mild kprf...i think! i went to a derm and he said its either keratosis pilaris or seboherroic dermatitis. but since i came on here i realise its kprf. anyway, i used to think i was a one off too, i never saw anybody else with hardly any eyebrow hair and pink cheeks and eyebrows. its lessoned slightly since ive reached my late 20s but still noticeable. ive tried all sorts of steroid creams, shampoos, the eucerin redness relief kit(dont bother). the cream im using at the moment is called freederm and theres definate improvement after only a few days..give it a try



sebborehic dermatitis is oily skin, that scales or flakes. u should be sure what u have KPRF or sebborehic dermatitis by going to another derm because seb derm is very easy to point out, if u wipe any part of ur face with ur finger and its shiny then u have oily skin, if its also red than its sebborehic dermatitis.
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Old 03-27-2008, 09:14 PM
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Re: OMG I have KPRF also

the user doesn't necessarily have ulerythema ophryogenes. i has kprf in my brownbone/eyebrow area too.. not ulerythema ophryogenes (which is much mroe rare and also means the loss of eyebrow hairs) i have all my eyebrows, thank god!


Quote:
Originally Posted by anne View Post
Hi - you may already know, but the eyebrow thing is called ulerythema ophryogenes (UO). Like KPRF it is a keritinization disorder. It can occur with KPRF but can occur separate from it.

UO is reasonably rare. If you want to find out more about it check the forum devoted to it on ths site.

Regards
Anne
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Old 03-28-2008, 01:06 AM
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Re: OMG I have KPRF also

Yes I agree - Kp in your eyebrow area does not automatically mean UO. The symptoms of UO are hair loss and redness. If you read rorschach's posts you will notice he mentions both of these symptoms ie:

"i also have very thin eyebrow hair"

"i never saw anybody else with hardly any eyebrow hair and pink cheeks and eyebrows"

So from all that I am pretty sure it is looking like UO. You are fortunate you have all your eyebrow hair. UO is rare and is often undiagnosed. Hopefully rorschach can research UO for himself and decide if it looks like UO and get a derm to confirm it for him.

Last edited by anne; 03-28-2008 at 02:42 AM.
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Old 03-28-2008, 11:58 AM
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Re: OMG I have KPRF also

didn't catch the lacking-eyebrow hair comment in rorschach's previous post (chalk it up to tiredness and line-skipping)..only the red/pinkness. But, yeah, from what I read UO is a very rare congenital defect. A derm's diagnosis and treatment is definitely the way to go on this one.

Quote:
Originally Posted by anne View Post
Yes I agree - Kp in your eyebrow area does not automatically mean UO. The symptoms of UO are hair loss and redness. If you read rorschach's posts you will notice he mentions both of these symptoms ie:

"i also have very thin eyebrow hair"

"i never saw anybody else with hardly any eyebrow hair and pink cheeks and eyebrows"

So from all that I am pretty sure it is looking like UO. You are fortunate you have all your eyebrow hair. UO is rare and is often undiagnosed. Hopefully rorschach can research UO for himself and decide if it looks like UO and get a derm to confirm it for him.
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Old 03-28-2008, 12:01 PM
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Re: OMG I have KPRF also

Quote:
Originally Posted by pumpkinsteen View Post
I use cortaid.. the cream.. I think it works really well
do you use anything else in conjunction with cortaid aside from avoiding caffeine? how long did it take to see results? just curious because I've tried it before, for redness, but only a handful of times.
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