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  #16  
Old 03-31-2008, 04:04 AM
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Re: Finding a scientific cure

Hi - was just thinking it would be really good if you could link up with someone already studying in the field and I remember RCM posted this a while back. He is based in South Africa and according to his profile is only 24 years old. Here is a quote from one of his posts:

Quote:
Hi everyone

I would just like to voice my opinion about Paxil.
Before I start, I would first like to say that I am a Medical Doctor, and have been doing dual specialisations in derm as well as surgery.
I also have KPRF, and I fully understand the social implications of flushing.
You may want to personal message him to see what he suggests, since like you he has KPRF and is probably trying to find solutions for it.
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  #17  
Old 04-05-2008, 06:03 PM
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Re: Finding a scientific cure

Lets try and keep this thread alive. everybody should follow the link bellow and sign the petition to end KP. we need everybody's help on this.

-Kirk

Keratosis Pilaris Research Petition
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  #18  
Old 04-07-2008, 05:20 AM
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Re: Finding a scientific cure

anne> alright! His name is RCM. I'll check him up, but im at work right now..

Sorry for not taking part in this thread so much, but i have have no internet where i live, and lots of work all day long.

But im still in for studying medicine. It's hard to get into medicine studies, though..
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  #19  
Old 06-18-2009, 04:25 PM
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Re: Finding a scientific cure

Hey Johan, im not sure if you still post on these forums, but have you found anything useful with your research?
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  #20  
Old 06-18-2009, 04:58 PM
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Re: Finding a scientific cure

Hello everybody!

Things have changed. Things have changed a lot since i 2005 started to get flushes and found out that i had KPRF. It was a big crisis in my life, and it made me skip my studies in physics, even though i was half way through and start studying medicine to find a cure. It made me move from town to town. Ive talked to psycoterapeuts and friends, bought expensive and suspect drugs over the internet from the US and China.

I felt terrible for a long time, but now i actually have accepted the disease. A thing i thought was totally impossible. And i really dont suffer that much anymore.

Maybe it takes three years to get through i crisis like this one. For me i think it was like that, and im very happy for it. Now iacan actually be delighted by the moment and work with things that make me happy.

Also it maybe was necessary for me to start studying medicine to find out that finding a cure for KPRF is not easy. Even thogh you might be gifted you need a lot of time and resources to manage that. It can for sure be possible, but i leave the issue to someone else (but cures are very rare: the more likely product from research would be a more effective treatment - still not perfect). I want to work vere my creativity brings me and what really thrills me: i will this autumn join a group that are dong research of the brain and parkinsons disease.

Studying medicine (which i have done for two semesters now) i also found out that there are a lot of conditions that are just as terrible and even more terrible thatn KPRF. And what i think we KPRF:ers should do is to make our skid disease take as small part of our lives as possible. Take the good treatment (for me Vbeam laser improved my condition around 70 %, and i very often use sun protection) and then forget about the thing.

I have heard about a research in psycology about people that lost both their legs. The first two years these people were less happy compared to the test group that hadn't lost their legs. But after two years many of the ones that had lost their legs (the ones that didn't flee into a destructive lifestyle, with drugs and such) got just as happy, and even happier, than the test group. And i think this is how we have to deal with KPRF to. We have to accept it - and make the best we can of the situation.

Enjoy the summer (or winter if you're down under)!

/Johan
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  #21  
Old 06-18-2009, 05:08 PM
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Re: Finding a scientific cure

Have you found taken any medicenes or topicals reduce the redness any? If so, which ones?
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