Just Make The Redness Go Away

mooza · #61 03-27-2007, 12:02 PM

hi my dearest fellow kp'ers!

Well, I'm still in university (first year), so I had no time to take off, and the swelling and bruising is minimal, as long as you cool very well after the treatment (believe me, I looked purple right after treatment!)
So you cool very well, with icepacks, hours and hours on, and then put an anti-bacterial ointment on the treated area (your doctor will inform you about this)
I got a treatment Friday at 5 in the afternoon once, and by Monday it was barely visible (just some small crusts on cheeks, really minor) First two weeks definately put a total sunblock on, your skin is even more susceptible to sunrays than it already is without v-beam. I tell you guys, it have had to struggle with really bad facial redness since I was about 14, and now I feel so good, just because of the sun, vbeam and tretinoin cream that I use in winter (great stuff!)
I can explain to you the damaged/dilated blood vessles... You probably also experience periods of really bad, long-during facial flushing? When you flush a lot, the vessles pop because of the heat. Same with people who drink too much alcohol. This is a simplified version of what my dermatologist told me

I hope I was able to help you out!
If you need any more info on v-beam, just ask
I live in Belgium by the way
arrividerci

!
xxx

mooza · #62 03-27-2007, 12:06 PM

Also, please don't let yourself go through the pain of keeping hope with all sorts of products. I have bothered about that for waaaaaaaay too long, always followed by a feeling of disappointment by lack of efficiency. I was a bad case, so my dermatologist told me, she just said it straight to me, nothing will help except laser. Boy was she right! I stopped wearing that horrible full-coverage makeup and now wear a light skintone-match foundation with sunscreen. Laser is really life quality-improving. And again, Sun

.xxx

drummond · #63 03-27-2007, 04:26 PM

Quote:

Originally Posted by anne

I often ask the same questions - some more I could add to the list are:

why does KPRF kick in often in your teens? (obviously hormone connected - I guess)
with ulerythema ophryogenes - why does the hair on the just the outer eyebrow get attacked and not the middle part?
Why does normal KP tend to be worse at the top of your arms and not so bad on the bottom part?

anyway here are some possible answers to some of yours:
- the heat from your cheeks drys up the oil - so no pimples. I was the same - never had a single pimple in the cheek area
- the redness is caused by the hair follicule being blocked and inflamed - even though you might not see the hair on your face it is there. However with KPRF does the keratin do more than just block the follicule? - does it actually damage the blood vessels as well (unlike KP on the arms where the redness is just dots and not one big mass of redness?????)
- my skin is past the really bad infammatory stage of these KP disorders and I have found that using retin-a cream had got rid of that 'thick' feeling the skin on my cheeks always had. Now my cheeks actually feel soft like my other skin instead of 'thick' (hope that makes sense!). I never tried AHA's or retina on my face when the KPRF and AV were active so I don't know how the skin would tolerate these
- with regards to genetics I have read that it is x linked dominant, but in my family only my Dad had normal KP. I have read that males can often show more symptoms because you guys only have one x chromosome i.e. XY whereas females have two i.e. XX. Therefore females may have a normal and an effected X which help to balance each other out.

One last question - it seems that there is a far higher percentage of males on this board with KPRF than females. Not sure if it is because females can cover their redness up with makeup more easily or whether in the general population men are more affected by KPRF than women?????

Dear Anne . I would like to introduce myself to this forum as i will be asking a few unusual questions hopefully as long as no one objects to me asking. The reasons for me asking these questions is that i used to have seriously bad rosacea from which i cured myself of. although rosacea is different in outwardly appearance the root of the problem with all spots no matter what the appereance of the spot or skin affliction is the fact that the root cause which is a digestive problem is the same.

The only part at the moment that i do not understand is ok so its hereditary or a malfunction due to lack of what Gene. So then when you don't have the proper gene and it's missing why does it cause you to have a skin problem has anyone told you why it affect the skin and not something else, or what is the malfunction biologically speaking? Drummond

JustaKid · #64 03-27-2007, 07:58 PM

Well i am 17 years old and i am a guy.....i have KP only on my chest and the back of my arms. i have KPRF on my face without bumps just the redness. F.Y.I being a teen and having KFRP sucks really bad, the anxiety that comes along with it is just horrible and i feel bad for anyone that has to go through it. I know many people say just be yourself and who cares what other people think but it is much harder when you are in a school with thousands of other kids. Anyway i have found a good way of covering it up, it really helped me gain confidence. I use a type of face cream that i recieved from a dermatologist, i do not know the ingrediants right now but i will update later. It is to my knowledge a type of steroid. Basically i use this stuff at night and when i wake up just shower and it washes off fine but the effects still last. To my surprise even when i sweat and work out a lot it still helps extremely. After i wake up and wash it off i apply the eucerin redness relief(SPF 15). Combined these 2 products are able to help me. I have found the eucerin redness relief actualy reduces the heat that comes from my face as well as the redness, while the steroid i apply at night just reduces redness as well as makes my skin smoother. I also drink only diet soda, as i suspect the sugar in normal soda and other things usually sets my face off sending up a red flag. So i will get the ingrediants of the steroid cream and upate later, it is a special mix that the derm gave me and is prescription.(Note after shaving and applying it burns like hell). My mom had the same thing and symptoms i do and hers mostly went away as she got older, so i am hoping for the same. Best of luck.

anne · #65 03-28-2007, 01:01 AM

Quote:

Originally Posted by drummond

the root of the problem with all spots NO MATTER WHAT THE APPEARANCE OF THE SPOT OR SKIN AFFLICTION is the fact that the root cause which is a digestive problem is the same. .....AT THE MOMENT that i do not understand is ok so its hereditary or a malfunction due to lack of what GENE. SO THEN WHEN YOU DON'T HAVE THE PROPER GENE AND ITS MISSING WHY DOES IT CAUSE YOU TO HAVE A SKIN PROBLEM HAS ANYONE TOLD YOU WHY IT AFFECT THE SKIN AND NOT SOMETHING ELSE. OR WHAT IS THE MALFUNCTION BIOLOGICALLY SPEAKING? DRUMMOND

Hi Drummond

I am no genetics professor - but my limited understanding is that the fault for a lot of these KP disorders lies on the short arm of chromosome 18p. It may not be a deletion but rather a slight change in the genetic material. Several syndromes have the rarer AV and UO variants as part of them i.e. noonans, CFC syndrome. Literature has sighted the rarer AV and UO variants as often being accompanied by other genetic problems. This is the case in my family.

With regards to skin conditions being a digestive problem - I am not sure what you mean by that?

drummond · #66 03-28-2007, 11:14 AM

Quote:

Originally Posted by anne

Hi Drummond

I am no genetics professor - but my limited understanding is that the fault for a lot of these KP disorders lies on the short arm of chromosome 18p. It may not be a deletion but rather a slight change in the genetic material. Several syndromes have the rarer AV and UO variants as part of them i.e. noonans, CFC syndrome. Literature has sighted the rarer AV and UO variants as often being accompanied by other genetic problems. This is the case in my family.

With regards to skin conditions being a digestive problem - I am not sure what you mean by that?

DEAR ANNE, Thank you for your reply it does go some way to answering my question but I need to know a bit more; please I be patient with me. Maybe if I ask the question another way like this. If you had all the normal genes say like a normal person what bodily function would that gene perfom in your body that is not happening now. YES you may reply well then we WOULD NOT HAVE KPRF. I suppose when you start to suffer from KPRF YOU GO AND SEE THE DERM who tells you OH its hereditary and its because you have a missing gene; but do they actually tell you what the job/function of this missing gene is?

anne · #67 03-29-2007, 01:50 AM

Sorry Drummond, this is all a bit beyond me. My understanding of genetics is very basic!

All I know is that a genetics professor is studying me and and my son at present with regards to UO and AV and other congenital problems and after several months he still hasn't found anything really conclusive as to why we are both affected.

And as he himself said to me even if they find the gene it probably won't help the condition at all. I must admit when I think of the whole genetics thing and what can go wrong I am amazed at what a miracle it is that most of us are basically 99.9% genetically okay.

drummond · #68 03-29-2007, 04:34 PM

Quote:

Originally Posted by anne

Sorry Drummond, this is all a bit beyond me. My understanding of genetics is very basic!

All I know is that a genetics professor is studying me and and my son at present with regards to UO and AV and other congenital problems and after several months he still hasn't found anything really conclusive as to why we are both affected.

And as he himself said to me even if they find the gene it probably won't help the condition at all. I must admit when I think of the whole genetics thing and what can go wrong I am amazed at what a miracle it is that most of us are basically 99.9% genetically okay.

I BELIEVE HE IS QUITE RIGHT BY SAYING IT WOULD NOT PROBABLY HELP.HERE IS WHY AND THIS IS MY REASONING:THE CAUSE OF THE END EFFECT WHICH IS KPRF BEGINS THE MOMENT YOU EAT CERTAIN FOODS WHICH YOUR BODY IS NOT FULLY DIGESTING PROPERLY. but this is where the crux of it is , the partly digested food is entering your body in the normal way through the villi. IN a normal person where the food is digested properly they do not experience say in this case a skin problem because from the properly digested food all the materials required by the target gland are basically in a useable form so the excreation from the gland is normal hence there is no skin problem as an example. but in our case the basic material for a particular gland is flawed. Therefore this unuseable material prevents the proper gland function leading to a visible skin disorder. FURTHERMORE because our bodies are absorbing this semi digested food , which is acidic the p.h. of the body is lowered and we become unconcious of the fact that we are in a constant state of acidic dehydrating.This situation leads to the redness . Fats and oils are the first main cause then normal everyday acidic drinks and diuretic drinks. So therefore by having this missing gene.IT MUST PREVENT THE PROPER DIGESTION OF CERTAIN FOODS. What can you do about it; well the only thing you can do is to work round it, that way by eliminating the certain food the chemical process cannot take place.

helpless mom · #69 03-29-2007, 09:06 PM

Hi all,
The digestive theory is what my son's naturopath is following in treating his KPRF. He believes that after years of gluten allergies (which also leads to allergies to other foods) that there he has no absorption (my son does not show hardly any absorption at all) and the body is also going into "battle" against himself - it is an autoimmune response triggered by allergies. But... after 3 months of gluten-free, dairy-free, beef-free he is still the same. He has been on all kinds of supplements, done tons of testing and has had 4 IV treatments (one week apart) of nutrients to see if putting them directly into the bloodstream makes a difference. Not yet! I have noticed how several of you have commented on being thin and cold or Raynauds, as my son has. He gets more & more depressed every day.

Has anyone researched Dr. David Nielsen in Texas for Micro-ETS surgery? It also looks like he has linked with Dr. Nase who is the guy laser treating Rosacea. (My son had laser treatments 2 years ago with no effect either). I don't know how to save my son anymore ... my heart aches for all of you battling this horrible affliction. God Bless and thanks for letting me vent

cycloverid · #70 03-29-2007, 11:26 PM

When seeing a Gastroenterologist recently, I had blood tests done and everything came back normal. No vitamin deficiencies; nothing weird. I thought perhaps that it would come back with vitamin deficiencies and explain something about my digestive system. It did not. Nonetheless, if what others are saying is true, it's not actually a vitamin deficiency, but rather an inability to break down certain compounds in food properly. What can be done about this besides avoiding the foods? Is there nothing?

jhndaemon56 · #71 03-30-2007, 12:04 AM

I have no idea about this vitamin thing, but for some reason, the only time my skin is semi-white and smooth is when I wake up, maybe because I sweat in my sleep which may help. Anyway, can't a plastic surgeon grapht my skin off? wouldn't thst fix the problem, at least for a while?

anne · #72 03-30-2007, 12:50 AM

Quote:

Originally Posted by helpless mom

(My son had laser treatments 2 years ago with no effect either). I don't know how to save my son anymore ... my heart aches for all of you battling this horrible affliction. God Bless and thanks for letting me vent

Helpless mom - I feel for you and your son. Can you remember what type of laser was used to treat him and all lasers are not created equal. Pulse dye laser treatment has helped my redness - is this the type of laser that was used??

anne · #73 03-30-2007, 12:54 AM

This whole food theory is interesting but I can't understand why at 13 I had perfect skin and then with absolutely no change in diet by 14 my skin was a mess and terribly affected by KPRF, UO and AV???

drummond · #74 03-30-2007, 01:02 PM

Quote:

Originally Posted by cycloverid

When seeing a Gastroenterologist recently, I had blood tests done and everything came back normal. No vitamin deficiencies; nothing weird. I thought perhaps that it would come back with vitamin deficiencies and explain something about my digestive system. It did not. Nonetheless, if what others are saying is true, it's not actually a vitamin deficiency, but rather an inability to break down certain compounds in food properly. What can be done about this besides avoiding the foods? Is there nothing?

Well cycloverid exactly what tests did you have. For example could you go and ask him what was the p.h. of the digested food material called chyme found in the area of the villi and the proportions of the or any remaining digestive juices or fatty acids and what types of fatty acids present;would he know that. did he say if you had bile reflux or not. do you sweat during the night or sweat at all, and if you do sweat do you sweat from all over your body or not the kprf parts.
On the question of nothing. While i am writing this i feel that i may be offering false hope which may come to nothing and then if it did come to nothing i would feel terrible. What strikes me about people with skin problems is that they belive the problem is with the skin . My opinion is the cause of the skin problem is only the end effect of something going wrong from the inside very similar to rust on a car pushing of the paint and rusting the metal from the inside. The other thing is to gather important information on your body by noting any sensation that happens to your body and any part of your body no matter how slight and no matter where it is. Especially while eating food or drink learn to listen to the body and collect data. by doing this you will be developing a more scientific approach to your problem. I truly understand the anxiety of the skin problem but to progress the problem it will need to be studied from a new angle based on a more scientific method in relation to our own body. PLEASE I HOPE DON'T TAKE THE POST AS BEING PERSONAL OR OFFENSIVE .

cielo · #75 03-30-2007, 04:05 PM

Hi
I am sorry to that your son is having no luck with his KP issues. I was wondering if maybe he is sensitive to other foods. Not just the ones you eliminated for 3 months. I recently had a Vega test done and have been following along closely with others on Baronsters forum worst case of KP cured naturally . We are all starting the process of elimination and learning a lot about what foods effect us the most. The common denominator really seems to be Wheat/gluten and Dairy(especially cheese) But others have discovered they are sensitive to certain vegitables, fruits, nuts, rice, potaoes,ect.....
You may want to communicate with others on this forum, because many of them will be seeing naturopathic doctors who have helped many others to cure their KP through healing the gut or correcting certain deficiencies. They have been so helpful in educating me and giving me insight into my own sensitivities as well.
good luck.
cielo

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