Anyone else have skin like this???
This is a discussion on Anyone else have skin like this??? within the KPRF (Rubra Faceii / Red Face / Flushing & Blushing forums, part of the Other KP Topics category; Jeeze man! I have the same type of complexion as you do! It's even funny because I also have taken ...
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#16
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Jeeze man! I have the same type of complexion as you do! It's even funny because I also have taken pictures of my KPRF and seen the same things! Has anyone tried laser treatment? I am going to have a few proceedures done and hopefully it will work. Good luck and God Bless you all!
-Phil |
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#17
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Hi Philmore - I have had two lots of laser treatment done for redness caused by the kP variant 'Atrophoderma Vermiculata'. The derm used the latest model Vbeam pulse dye laser. My cheeks and eyebrows were really red and it has helped to tone down the colour. For me it will take a lot of treatments to get rid of all the redness. I haven't read any medical journal articles or medical reports about lasers treating KPRF whereas I know it has been trialled and proven affective with AV. It may check to ask the person doing the treatment if they have treated KPRF before and with what success as treatment can be expensive. All the best.
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#18
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Thanks!
Thankyou Anne! So far my appointment is dated on November 23
, so I will ahve to wiat a while before I can even think about getting treated. If the laser does work on the redness for my KPRF I am going to spread the news around.-Phil |
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#19
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Rosacea??
Looks like rosacea to me
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#20
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Prager34 are you sure you developed this condition in your teens? It is almost always present at infancy. If you look back at pictures of yourself is there no trace of UO or KPRF at all?
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#21
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I developed mine at the same age as Prager34. Perfect skin until around age 13 and then the KP, KPRF, UO and Av set in with avengance! From studies I have seen the age of onset can be as early as infancy, however a reasonable proportion of people do not show symtoms until their teenage years. I guess it goes back to genetics - it seems that the hormone things just gives it all an 'extra push' and brings it out in some people. I have actually seen documentarys on other genetics disorders that also do not kick in until puberty - strange isn't it.
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#22
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Same with me and my 12 year old son. Perfect skin until age 11 or 12, and I mean perfect- no baby acne, no redness, absolutely no signs of KPRF until puberty. Most people I have talked to that have KPRF developed it when puberty hit and a few new moms did not have it until pregnancy. I do not think it is something that we can pinpoint at infancy.
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#23
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Anne how is New Zealand? Did you partake in any of the LoTR movies?
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#24
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Hi Philmore - NZ is a wonderful place. No - I didn't take part in any of the Lord of the Ring movies! but they were filmed around Queenstown area which is only about 2 and half hours drive from where I live but I do know people who rode their horses in some of the scenes.
Have you seen the film released last year 'The worlds fastest indian' (about a guy who made his own bike to race on the salt flats at Utah) - well that was filmed in my home town. I lived in London for a few years but when we started having children I came back to NZ as it is a great place to bring up kids. However I often wonder if the smallness of our population means our derms do not come across the rarer skin conditions. I was not diagnosed to age 35 and do not even know anyone in person with UO, KPRF or AV. That why it is great having a site like this for me to gain ideas on treatment (as one of my kids looks like they have inherited these things from me I am keen to pick up as much info as possible). I appreciate everyones contributions and even if we don't find a magical cure it is good to just share with people who have been there and understand how this stuff effects you. |
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#25
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Your skin looks excatly like mine does when my face is in the sun for too long. Is it like that all the time??
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#26
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Yeah, that's how it is all the time for the most part. I do have random occasions when its not that noticeable but its usually just like the pictures.
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#27
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have you seen dermatologists?do you have diagnosis?
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#28
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I've seen several dermatolgists in the past and none of them have even heard of KPRF. Most suggest rosacea at first sight but then don't have any explanation after examining me.
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, so I will ahve to wiat a while before I can even think about getting treated. If the laser does work on the redness for my KPRF I am going to spread the news around.
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