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Anyone out there been diagnosed with Keratosis Pilaris Atrophicans Faciei?

This is a discussion on Anyone out there been diagnosed with Keratosis Pilaris Atrophicans Faciei? within the KPRF (Rubra Faceii / Red Face / Flushing & Blushing forums, part of the Other KP Topics category; Hi - I looked at this forum off and on over the last couple of years and I notice the ...

 
 
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Old 07-24-2006, 05:11 AM
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Anyone out there been diagnosed with Keratosis Pilaris Atrophicans Faciei?

Hi - I looked at this forum off and on over the last couple of years and I notice the terms Ulerythema Ophryogenes and KPRF used. UO I understand as the eyebrows and KPRF as red KP on the face. I have never ever heard anyone apart from myself talk about Keratosis Pilaris Atrophicans Faciei or Atrophoderma vermiculata or honeycomb atrophy. These are all the same names (as far as I am aware) for the rare KP variant which actually eat away at the skin of your cheeks causing inflamation and redness and ends up leave a wormeaten - honeycomb sort of pitting on top of the cheeks. Does anyone have this or do you all just have red bumps on your cheeks. It would be really neat to find someone who has it. Because of the rarity of some of these KP variants I think different continents use different names but from my research KPRF and KPAF are quite distinct - any comments welcome
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Old 07-24-2006, 12:06 PM
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is there anyway you could post a pic? That may be helpful to some. I have it on my face, but I no longer have bumps, those went away after puberty, but the redness and rashlike appearance sounds more like what you are talking about rather than the pics I have seen on here for the face.
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Old 07-24-2006, 05:35 PM
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Atrophoderma vermiculata pictures

Hi - I haven't got a digital camera and at the moment my skin is recovery from laser treatment - however the attached link shows you a picture of two people with atrophoderma vermiculata before and after laser treatment. My natural skin type is quite fine and has a tendancy to a high colour anyway so my skin has more of a red than that of the photo however it shows the pitting that AV causes. I also have UO on the eyebrows whereas these two people just have a AV variant.

http://www.angelfire.com/journal2/sadhelp/kpafavl.htm

The above site was put together by a guy from New York who is studying dermatatology. It has some good articles on it about KP and also has a message board facility.
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Old 07-25-2006, 06:40 AM
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Old 08-06-2006, 04:38 AM
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I'm recently been diagnosed with atrophoderma Vermi as well. It's just the starting and not sure how badly it can become. Anne, can let me know how fast does it occur? one or two depressed pores per day or it come all at once and spread through the face?

My nose is being depressed too but doc can't seems to find any cause. It's suspected to be atrophoderma and I'm depressed to see it get worse each day. When will this damage stop?
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Old 10-14-2006, 02:30 AM
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Hi,

My son has been diagnosed with atrophicans too (though we have had as many diagnoses as we have dermatologists to give them). He has very slight pitting on his right cheek.

Does your face hurt (sting, burn, hot) too? That is ruining his life more than the redness!
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