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New member with Red face KP

This is a discussion on New member with Red face KP within the KPRF (Rubra Faceii / Red Face / Flushing & Blushing forums, part of the Other KP Topics category; I am new to the forum I have had KP for 4 years now and this only affects my face ...

 
 
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Old 07-23-2006, 03:04 PM
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New member with Red face KP

I am new to the forum

I have had KP for 4 years now and this only affects my face which at times is bright red and inflamed.

I have visited many different doctors over a period of 2 years and tried various treament, of which none have worked.

I decided to have a small biopsy to determine if it was KP that i really had as my condition is just red with no bumps?

The biopsy results came back and it said I had a version of KP which is particulary rare.

I have tried laser treatment at the highest setting possible and it was extremely painful and left me swollen for about a week and a half.

This treatment seemed to have no effect and was very costly, for reference it was the latest v-beam laser machine.

Nothing So far has seemed to help or benifit my condition. I have search through this forum and found alot of memebers with bumps and a lot of references to this.

However i was wondering if anyone just had a red face like me and that they have found anything which reduce's the redness.

Today I found another product called Bio-oil which im going to try.

I look forward to hearing from anyone who has any suugests to help with me red face.

Many Thanks
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Old 07-23-2006, 03:19 PM
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Arrow Hello, hope this helps!!

The best way to conquer the red face of KP (like me) is to relax try not to think about it because it can trigger it off, i have learnt to do this and it has cleared up a bit...also check on what foods you eat, make sure that you eat plenty of vitamin A & D...the body can convert sunlight into vitamin D, so if you live around sun then vitamin D isn't so important. Carrots are the best form of vitamin D and it is best to drink carrot juice.

I have posted two photos of my KP, but it is much better now.
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Old 07-23-2006, 03:30 PM
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my condition is more patchy? yours seem to be quite even and less inflamed.
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Old 07-23-2006, 03:33 PM
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Arrow KPRF Controlled By Emotions And Diet

Well if you are able to get me some photos i can help you, mine has changed alot since then...my face is a much paler version of red, most of the time its barely noticeable.
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Old 07-23-2006, 04:02 PM
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Here is my face!

Here is my face! Today
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Old 07-23-2006, 05:46 PM
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Littlepaws, keratosis pilaris tends to affect the body if you have the condition on your face. If it is keratosis pilaris you will probably have bumps on your upper arms and legs aswell. KP follows a pattern and the face is usually the last area affected. KP on the face is basically diagnosed by looking for additional KP on the patients body.

You have visible bumps on your face if you look closely at your photos. But there are many different types of folliculitis(hair follicle disorders) that could be responsible. If you know the name of rare varient of KP you were diagnosed with I might be able to help you further.
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Old 07-23-2006, 06:30 PM
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I believe

Keratosis Polaris ophryogenes

I had a biopsy to comfirm this and lots of patch test.

What I cant understand with my condition is that I have no other marks anywhere on my body?

Also Ulerythema ophryogenes I believe is to do with the eyebrowse.

I had 4 Medical Experts study me for nearly 2 years. Until I gave up seeing them because the biopsy recorded KP. And my symptoms are slighty different to that of normal KP sufferers maybe this is why my type is rare.

They had never seen this before and apparently I ve forwarded into a medical magazine article, they all looked very confused.

Neverless With all the test and product I have found nothing works.

My skin has alway been very good up until the age of 28.

One strange thing they did find is that i showed a reaction to mite droppings?

Anyway Then i found this site a noticed that although some of our symptoms
are simular, there dose'nt seem to be a set pattern?

Also one other thing the medical staff said was my case was normally shown in children up to the age of 5, then they grow out of it and that it is extremely rare in adults.

Hope this helps
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