wot a suprise to see that none of those useless bloody dermatologists bothered gettin back to me! i had two replies that led me down the road of normal KP although i stated quite clearly in my e-mails that this was KPRF NOT KP so i dont even think they read them.
mark

(one email from the states was quite pleasant but nothing of any gain to us)

Im not suprised. You probably ruined their day when you made them realise they dont everything.

I think derms are scared of a challenge to find a cure. That or they think " its rare disease anyway. Not many will benefit "

same here, did not get any reply when i mailed a derm. :/