Hello everyone

I'm new here(obviously), my name is Kel, I'm 24 and from the UK.

I haven't officially been diagnosed with KP but I'm pretty sure that's what I have. Since I was around 12 I've always kept my arms / back covered up because of unsightly 'spots' and up until a few weeks ago I just assumed I had rubbish skin or something, I found out about it whilst looking up symptoms my daughter is suffering from.

I won't go into great detail but basically she's had alot of bowel problems for the past 6 months and whilst looking up some other little problems she has I somehow stumbled across some information on KP and then it clicked, that's what I had on my arms / legs/ face and I believe my daughter has inherited it.

I have red bumps on my arms / back and a small patch on my cheek with depressions on it, I also have a red mark on the side of my face that I've always had but the rest I only recall being noticebale from when I hit puberty(around 11).

My daughter has a few bumps(not red) on her arms but nowhere else but something that has got me puzzled is her scalp. I've been trying to find out if there is a form of KP that effects the scalp, she is 3 next month and her scalp looks like it's covered in cradle cap(brown scaley patches) and more worryingly is that her hair seems to have fallen out / got thinner over the past 2 months.

I haven't tried to treat my arms with anything, it's nowhere near as bad as it was when I was younger and I guess in a way I'd just accepted that I'd always have the spots and will always have to keep covered up, but now that I have found this site and resources I may well try some of the treatments I've read about.

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Hello Azaezl,

Welcome to the KP Forum. You may want to see a pediatrician or dermatologist about your daughter's scalp.

This thread may have ideas for you. It is a collection of other's success stories:
Thread Devoted to What Works For You

I hope you find something that helps you and your daughter, but don't try any product that contains acids on her -- too harsh for young skin.

kebod

hey azaezl, it sounds like you and your daughter have the demotox parasite.
go to this link to find out how to treat it.

The Sea Buckthorn Treatment Guide

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i took this from the link.........here are some of the symptoms explained

- It’s genetic. Someone in your family has KP too and you can pretty much trace which side of the family you got it from. For example, only the Philippine side of my family has KP and I can trace it back to my great grandmother on that side. As a result I have KP.

- Hair problems. For me, it was oily, thin hair that tended to shed a lot. While I don’t think this affects everyone as how your hair reacts is also genetic, from what I’ve found most people with this suffer from either light hair loss (I personally shedded my hair a lot, leaving hair all over the bathroom) and/or hair that gets oily quickly. This is simply another reaction to the mite as it has been proven that the mites can cause some forms of hair loss and hair conditions. This may really differ from person to person.

- Sores / Scabs on scalp. I’m not sure if this affects everyone. Many of us treated had this problem, where we’d find ourselves itching off tiny scabs or finding sores on our heads. This might be connected further to the “hair problems” symptom above.

- Weak immune system. Once again, I’m not sure if this affects everyone with the parasite but from the few people I have talked to with the parasite, we all seem to share reduced or weak immune systems. I was often sick as a child and my immune system did not improve as I grew up. It is also said that after long term treatment of the mites, people find they feel healthier and have an increased strength in their immune system. This would make sense, as perhaps the parasite is placing a burden on the body’s immune system overall. A link has been found between Rosacea, Demodex parasites, and suppressed immune systems so Demodex induced KP is probably not that far off the mark!

I urge anyone who has had this form of KP and treated it successfully to please post your symptoms here. That way I can possibly expand, concentrate, or eliminate the listed symptoms of Demodex induced KP.

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Thank you for the welcomes

Kebod - My daughter is already under paediatric care because of her bowel problems and I did mention KP and what could be wrong with her scalp, he just looked at me blankly like I was speaking another language, he obviously didn't know what KP was and he was honest enough to say he hadn't a clue what could be causing the cradle cap on her head.

I'm not too worried about my arms / back, I'm not really one for showing flesh plus it's nowhere near as bad as it was when I was 12-18yrs old but I'm mainly here for my daughter I just don't want her to be embarassed the way I was when I was younger and if the bumps get any worse(she only has a dozen or so on her arms at the moment) then I'll start treating her. thanks for the heads up on the acidic creams

JohnE - I'm not sure if my daughter or me have the demotox parasite as the symptoms don't apply to us apart from her scaly scalp. My hair is the opposite to what you described, it's very dry and I wouldn't say I shed it excessively, my daughter's hair is wonderful, nice and soft and smooth not dry or oily or anything it's just her scalp that's not quite right and despite it looking a bit scaly like cradle cap it doesn't appear to itch nor does mine.

The weak immune system, again my daughter and I are both very healthy, I was never a sickly child and even now I rarely get ill, same with my daughter, she may get the ocassional cold but no more then any other child the only real problem she has is her bowels but that's a very recent problem that started earlier this year.

I suppose it could be the demotox parasite, I just didn't think the symptoms you posted sounded like either of us.

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