KP on scalp?

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    KP on scalp?

    Hi,

    I have KP almost all over my body, red face, red irritated eyebrows with quite a bit of hair loss in the outer third, and was wondering if anyone knows if KP can affect the scalp? I'm 21, and have no baldness in my family whatsoever, but as my eyebrows have gotten worse, so has all the hair on my scalp thinned. I wasn't that concerned at first, but recently it has become very noticeable, and the hair loss is particularly severe in weird patches which don't resemble male pattern baldness at all. I have less hair than my father, older brother, and even my grandfathers. My scalp also itches periodically. I used to think the eyebrows and cheeks were bad, but this is much worse. Any feedback would be great, thanks!

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    it could be Alopecia Areata...

    try this link..

    http://images.google.com.mx/images?s...lopecia+areata

    (or just in google images search for Alopecia Areata)

    it shows images from people who have it.. if you have look the same go to a doctor (I read this could be treated and in some cases healed).. I'm 30 years old and I have male baldness pattern.. (try this another link to see if you have it)..

    http://images.google.com.mx/images?g...attern&spell=1 (or just in google images search for Male Baldness pattern)

    About KP on scalp.. I used to have Foliculitis (it's a little bit like KP but this can be healed with pills and special shampoos)..

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    Hi Ryan

    There is a group of rarer disorders that are tied in with normal KP. They are:

    Ulerythema Ophryogenes - this appears to be what you have on your eyebrows (I have this also)

    Keratosis Pilaris Rubra Faciei (known as KPRF) - this is red KP bumps on the face often occuring on the outer part of your cheeks - this causes general redness and flushing

    Atrophoderma vermicula - this is when mainly the top part of the cheeks are affected and you start getting small pit like depressions in the affected area -with this condition your cheeks end up very inflamed and take ages to calm down (I have this also). This is reasonably rare

    Keratosis follicurlaris spinulosa decalvans - this is very rare and affects the scalp (I have never come across anyone with this so don't know a lot about it) but I suspect this is what you have along with possibly some of the above

    the following site has a brief description of these disorders:

    http://dermnetnz.org/acne/keratosis-pilaris.html

    It describes Keratosis follicularis spinulosa decalvans as follows:

    'a rare familial variant which results in bald areas on the scalp and eyebrows'

    which leads me to believe that the scalp hair loss always occurs with what I term ulerythema ophryogenes (loss of eyebrow hair on the outer third of your eyebrows)

    If I were you I would research Keratosis follicularis spinulosa decalvans on the net to see if this fits with what you have and then go and find a derm who is familar with these rarer keritinization disorders.

    There are a few medical articles out there that have reported successful treatments for some of these conditions but I don't want to bombard you with too much info!

    Let me know if I can be of any further help though and I can post the sites where these articles occur. It would be best first though, to get a proper diagnosis so you know what you are dealing with.

    Regards
    Anne

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    Moderator anne's Avatar
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    Ryan are you still out there?

    Just want to 'bump' this thread up again for Ryan to see if he revisits

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    Thanks

    Thanks for the information Anne, although I have to say I'm not very relieved... the first doctor I went to said I have rosacea on the face and contact dermatitis on the eyebrow, which is clearly not the case. I've begun trying to find an informed doctor, I just hope I have some hair left when I find one, and that they are able to do something about it. Trying to Deal with my eyebrows has made my hopes pretty low, as there doesn't seem to be much one can do to stop KP. I've always suspected I had KP on the scalp but never heard of it's existence before. Of all the types of KP you listed in your post I would describe myself as having a full blown case of all of them, although I guess I have KPRF rather than AV. Anyways, I'll let you know how it goes, thanks again.

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    Moderator anne's Avatar
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    Hi again Ryan - you are right you need to get a correct diagnosis as soon as possible. It took me 21 years to get finally diagnosed but in saying that I had no excess to the internet like I do now and had no way of finding out if my symptoms matched anything experienced before. I could only go from Derm to Derm accepting whatever they said.

    I would suggest you get some info on Keratosis follicularis spinulosa decalvans and any of the other variants you think you may have and go to a derm with it and ask "does this sound like me". Like you I have also been misdiagnosed with Roscacea - if you have what I think you have it is rare. But I am no dermatologist so you do need a proper diagnosis.

    There is a medical article showing that the inflammatory part of this condition that causes hair loss can be treated. I can only get hold of the 'abstract' on PUBMED and have pasted it below.


    1: Hautarzt. 1993 Aug;44(8):529-34. Links
    [Keratosis follicularis spinulosa decalvans. Therapy with isotretinoin and etretinate in the inflammatory stage][Article in German]
    Richard G, Harth W.
    Haut- und Poliklinik, Medizinischen Hochschule Erfurt.

    Keratosis follicularis spinulosa decalvans (KFSD) is a rare X-linked disorder of keratinization of the hair follicle associated with corneal dystrophy. The clinical picture is characterized by solid follicular hyperkeratosis, especially on the exposed skin, sparse eyebrows/eyelashes, follicular scaling and scarring alopecia of the scalp, dry skin and ocular symptoms with keratitis and photophobia. We describe the three stages of the disease: onset, inflammation and partial remission and the treatment appropriate in each. Two patients in the inflammatory stage of KFSD, with recurrent deep, fibrosing folliculitis and perifolliculitis followed by spreading and scarring alopecia on the scalp, responded to oral therapy with retinoids. In both cases there was a distinct and lasting remission of the inflammation and stabilization of the spreading alopecia after treatment with etretinate (Tigason), up to 0.8 mg/kg body weight, or isotretinoin (Roaccutan), 0.5 mg/kg body weight, for 12 weeks. The follicular spinulous hyperkeratosis became softer, but persisted. Thus, oral therapy with retinoids appears helpful in the inflammatory stage of KFSD, even though there is little improvement in the follicular hyperkeratosis.

    PMID: 8376108 [PubMed - indexed for MEDLINE]

    Please let me know if I can be of any further help - I truly hope that you can get a proper diagnosis within the next few months so you can begin to effectively treat what you have.

    Regards
    Anne

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Keratosis Pilaris is a very common benign genetic skin condition. KeratosisPilaris.org is the definitive resource for KP on the internet.

KP appears as rough or bumpy skin on the back and/or outer sides of your upper arms. The severity of the symptoms varies from person to person. You can also manifest it on the face as a natural blush (known as KPRF or Keratosis Pilaris Rubra Faceii).

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