heloo everyone!
I have had some trouble with my computer so there had been a while.... I hope you all had a good summer. I have been trying to get in contact with different hospiyals here in Sweden to see if there is anything done on the research deparetment. So far no luck but i am not giving up. My suggestin if we want doctors and dermatologists to understand how desperate we are for them to find a cure the better are the chances that they start more research about. Next week i am expecting a call from a professor in scindiseases. Maybe she can help. I am also going to send letters to newspapers to se if there is any luck and if someone can help. Nothing i think will be done unless we try and get our voices heard. Ok talk to you soon.