Plz Read This Thread!! Allisonsullivan And Sammy8 Especially!!

Khrissy3000 · #1 07-22-2006, 12:49 PM

Hello, i am wondering if anyone out there is keen on researching with me on finding either sumthin tht works miracles or for a cure...i am no doctor but i am a sufferer and with the help of any of you guys, i am sure we will at least find more out about this skin disease.

people who i have an interest in is:

Allisonsullivan
Sammy8

I am after people who have some form of e-mail account, MSN would be a huge advantage and who will take this whole research seriously...like i have read on this forum, it is us sufferers who know more than dermotologists about Keratosis Pilaris.

KP and the subform KPRF sufferers only!!

allisonsullivan · #2 07-28-2006, 03:37 AM

What do you have in mind? I'm in!

nicole1202 · #3 07-28-2006, 03:48 PM

Hello! I just wanted to say that I am totally in on getting some research together in hopes of finding a cure for KP. I do not think many people know much about it and it is very disheartening when I go to the derm. office and they say that it will never go away and that I will have to just live with it. Surely there is something out there that can help/cure it.

Khrissy3000 · #4 07-29-2006, 03:42 PM

Theres 5607 people signed up on this board, i think if we all research on different aspects of this skin disease...we will come across new fidings and who knows maybe just maybe we will find this cure we all want which is hiding and waiting to be seeked. we know more about this disease than any dermatologist out there, i think if we all research on this we will at least find something which will reverse the symptoms to make us normal. theres a cure for everything maybe not now but in years to come there will be...maybe we could work together on finding a cure earlier. so carrot juice is the best for treating KPRF as to this day, we will go from there...i am dedicated to this board and my goal is to get rid of this unwanted skin disease, so to start this team off i say we all set our goal to my goal and we will set aims to get us there.

Khrissy3000 · #5 08-01-2006, 11:04 AM

I would like somebody to record how many people you see with KP and KPRF, and split them into skinny and fat, girl and boy groups...this will tell me who is more prone to this disease, do a tally chart. and do it for say an hour, but tell me how long you do it for. after that we will discuss the results...you might not see many people with this condition but even if it's just 1 or 2 it will certainly help me, best place to go is to a swimming baths. thanx for your help...these little tasks won't be so little when we piece everything we find together.

hopefoolcure · #6 08-01-2006, 11:12 AM

Hi

How do you intend to do it? I can response via email or MSN messenger. I have KP for years and to be exact, I have it for about 9-10years. I got it during my puberty age and during that period, I went for a mud crawl and KP was so unwelcomed but got attached onto me. Have tried and is still trying numerous ways and means to try to stop it but so far to no avail.

Khrissy3000 · #7 08-01-2006, 11:21 AM

I won't be able to cure it...BUT!! i will do my best to try and take away all the symptoms of KP, so that know one knows you have it and you will forget you have it. BUT!! i need some help from people on this board...theres 1000's of people, and if we all put our minds to it am sure we'll find something...theres individuals on here who are finding things that works miracles for them, so if we all put our minds together think of the possibilities.

If we all do our own tests on food, exercise or anything...if KP came later in life for some people then what made it come, was it a deficiency, an allergy. makes you think doesn't it?

hopefoolcure · #8 08-02-2006, 10:37 AM

Hi Khrissy3000

That would be interesting but what exactly you want to do? I'm still confused. However, I would like to learn more about it. Do you mean by reducing our psychological pain or eliminating our self inferiority?

One thing that I have noticed in Singapore is that people who 'carries' Keratosis Pilaris are people whom are plump or obese. I was once that category but am now lean after my puberty.

What actually precipitates this skin problem? I have once checked with a University in States on the possiblity of getting their medical professionals and students alike to do research on KP but was told that due to a lack of fuundings from the society, they could not proceed.

Why then must all KP sufferers suffers in seclusion? If possible, you guys over in states could help gather more KP sufferers and launch a campaign to plead for the respective foundations for aid.

Khrissy3000 · #9 08-02-2006, 02:56 PM

I believe that filling our bodies with Junk, (like someone has already mentioned on this board) opens a door for Keratosis Pilaris...and once it's inside, we say that it was obesity or fatty tissue which has caused it...thats True, BUT!! to get rid of Keratosis Pilaris takes more than losing weight...you need to pump your body full of vitamins and minerals in order for the Keratosis Pilaris to leave your system, change everything...the way you eat, the way you think and the way you exercise...the more you change the better effect it will have on your skin, alot of people are angry and upset on here because of what they have...and for those people suffering from KPRF, getting angry does not help this skin condition...it causes flushing and it burns like hell.
I have gained results from just lowering my salt, sugar and dairy intake...there is plenty of things people can change to improve there skin, heres a question...you want something to be moist, what do you do if it's dry?? i will tell you...you flood it, pour as much water into your body as you can...water is used to keep the skin moist and is used for many other thing as well. It takes more than one change to make Keratosis Pilaris go away, and there is no cure for Keratosis Pilaris because it is cured by basic health...and only we can do that.

Hope4thebest · #10 08-02-2006, 11:36 PM

Hey,

Your little research seems interesting. I like that you are dedicating a lot of time and effort to try and find solutions/causes to this annoying skin disorder.

I believe if everyone on the board looked back and wrote when they first had symptoms of KP, we may be able to find a common "cause".

allisonsullivan · #11 08-02-2006, 11:58 PM

Firstly, I got KP when I became pregnant with my daughter. It got really bad when I delivered and nursed her. I thought it might go away when I weaned her, but no such luck.

Secondly, I weighed 67 pounds more at the end of my pregnancy than I did to start with, so I thought, "Maybe if I lose some weight, it'll go away..." No such luck again.

Thirdly, I didn't just lose weight (52#!!

), I changed the way I ate, etc. I drink 80 or more ounces of water everyday, I don't use or eat salt (I use potassium chloride, Morton's Lite "Salt" instead. It's heart-healthy, and I swear, it tastes saltier than salt to me), I eat more fresh organic fruits, vegetables, and meats than ever, I've cut my dairy down to 6 ounces a day (at most, if any, mostly I use soy milk), I've begun using hormone and antibiotic-free meats. Fourth, I'm taking calcium, essential fatty acids, and a women's multivitamin. Now, after all those changes, and the weight coming off, I still had KP, just as bad as ever.

The only thing that has helped me is switching to the skin care system I'm using. It's all botanical and herbal and contains no mineral oil or animal by-products (My KP got much worse

when I used baby oil, which is mineral oil). Now I'm almost KP free (I say "almost" because it will flare back up if I get lazy and forget to use all 3 steps). I hope this helps with the research.

Also, I'm going to the pool friday, so I'll check out all the arms and backs and legs I see and report back as to who had what where.

allisonsullivan · #12 08-02-2006, 11:59 PM

Quote:

Originally Posted by hopefoolcure

Hi

How do you intend to do it? I can response via email or MSN messenger. I have KP for years and to be exact, I have it for about 9-10years. I got it during my puberty age and during that period, I went for a mud crawl and KP was so unwelcomed but got attached onto me. Have tried and is still trying numerous ways and means to try to stop it but so far to no avail.

What is a mud crawl?

allisonsullivan · #13 08-03-2006, 12:03 AM

Quote:

Originally Posted by hopefoolcure

What actually precipitates this skin problem? I have once checked with a University in States on the possiblity of getting their medical professionals and students alike to do research on KP but was told that due to a lack of fuundings from the society, they could not proceed.

Why then must all KP sufferers suffers in seclusion? If possible, you guys over in states could help gather more KP sufferers and launch a campaign to plead for the respective foundations for aid.

There's actually a petition we can sign to try to get funding for University research. I'll try to find the link and post it here, but since it's a "cosmetic" condition (Yeah, right, it has caused a lot of depression...) doctors are really not all that interested in finding a cure. If only the drug companies knew what kind of money they could make!!!

allisonsullivan · #14 08-03-2006, 12:06 AM

Here it is:
http://www.petitiononline.com/mod_perl/signed.cgi?kp1&1
Everybody sign it!!!! Please!!!