Hello KP Communitie.



I’m new in this forum, and I just want to tell you my story and opinions .



I’m a white skinned mexican affected by KP in 95% of body; my face, arms, legs, buttoks, everything is destroyded by this ****. I beg you excuse me if my english sentences or grammar structures are bad. I accept corrections. As you can imagine, I don't think in english, I must translate all my thoughts. Let’s start!

My case is kind strange, before my adolecence, KP was slightly only

on my face, but when hormonal changes begun at 15, all my skin became a disaster zone, as my self-esteem.



I’m 23 and I’ve been under treatment for about 2 years, it worked magnificiently during 3 or 4 months, my skin was softer but preserved the red lil’ bumps. After that, look like my KP became resistent to the drugs (Lac- Hydrin & Betnovate (betametasone)) and it doesn´t work as in the beginning of the treatment.

The saddest day of my life was when my deramtologist said to me : ‘The KP is incurable…there’s no drug to solve it, mainteneance is the only thing you need…..’ All my dreams became small parts. It means, I thought, no beach, no shorts, no swim, no show your body anymore, …no funny…It was devastating.

It´s hard to live with KP, and most of people don’t understand it, they think KP is funny, and disgusting of curse…and if you lived in a country where the KP is very uncommon, it became a nightmare! My observation, tell me, this suffer is more common among white people.

Everybody thinks my red face stain is for sunburn or cause I’m embarrased all the time, they look at you, and you can figure it out what they are thinking: what the hell this guy have in his skin???. After that, from time to time, this annoy and disgusting question emerges: why are you so red?? By the way, it Hurts a lot when a girl look at you in this way ….in the era before I knew that I have Kp, (<- hard to trtanslate that!!) I usually felt uncomfortable and embarrased, but now, when they inquire me that, I feel far secure of myself (my knowledge about KP brings me that feeling) and I just say: I Have Keratosis Pilaris…and explain some technical data mixed with medical terminology about my suffer, most of the time they are shocked by my sincerity and because I accept my defects and I know them. A large amount of persons are timid, fearful to say their defects…I´m not anymore.

I’ ve been investigating in relation to KP, and I’ve found interesting material, one of the best was one called ‘Retinoids’ a document of a dermatological clinic about this drugs based in A vitamin, that explain in a very clear way, how your skin works and why hyper keratosis appears, for example. It has lot of data, and medical terms, but once you consult this terms, you begin to understand your defects, and where do they come from. After this lectures, I have some thoughts over this topic, and I’d like to share with all KP communitie(if you have red some conlusions like mine before, really sorry, I don’t read post very much):



The color or texture of skin is a reflect of our healt, that´s a fact!…so, based in that fact, we can easly conclude that we have problems with our inner healt. So, KP in my very personal opinion is a malfunction of some organs or glands and the bumps are only the reflect(remember: cause-reaction), this malfunction as I told you before is reflected in our skin and I think it’s about an unbalance in absorption of A vitamin. Perhaps you´re thinking: “I already knew that…” well, for me the cure to this mess is not a cream or gel, that is only maintenance, in my case, if a gel were the cure, I must take a bath of it literally! ,what we need is a drug to put balance to our complex body chemicals. This substance, the chemical, or hormone which is lacking in our body, will be added to our blood in order to avoid the interruption of the normal cellular cycle(the main cause of KP) keeping in balance our unbalanced inner chemistry, not allowing our pores be stacked of keratin. Possibly the cure is not add quemicals….maybe we have reduce the level of some of them.

I have a question for all this communitie, a personal doubt: Does anybody know about blood analysis of one person affected by KP have been compared with samples of one normal person? KP must follow patrons inside the humans, all the KP suffers must have this misterious common patron, the same tracks. The key is find this patrons.

Until then, in my opinion, we´ll be giving to our skin (appling lotions)only maintenance, not a real cure.



My favorite part!!… Perhaps you´re wondering what about my relations with the opposite sex…Lol!!!…As you can imagine, it’s a catastrophe!..a total disaster, a complete mess!

Yes, of course!…some girls focus their attention in feelings, and don’t care much the external view and blah…blah…blah…let´s be frank (and crude), my experience tell me, no matter how good your feeligs are…most of girls preffers a good car with a normal cute boy inside rather than a guy full of Keratosis. For me is a fact.



I don’t blame nor hold a grudge agaist them. Maybe if I were normal, I ‘ve been acting in the same way…

It’s make me think something interesting: (if you don’t have childs…)Would you like to your unborn and future childrens have KP?..I wouldn’t be able to watch them being slowly destroyed by this **** as happened to me!…What about you?..I’ve been suffered tons of critics, and rejection all my life, caused only by this damn tiny keratin red bumps. I’m not too bad to transmit malfunctions to my childs! The best thing I can do for them is not bring them to life. After all…I’m a responsible father, aren’t I?



See you.

Nebeek

(abbreviation of: Never Been Kissed.)