I've been lurking and reading for a while, but finally decided to register and post. My dermatologist talked to me a couple of weeks ago to let me know he wanted to see me again. The reason being is that it seems the FDA has recently approved a medication (pill) for KP. A pill that actually helps reduce the body's production of keratin. It's not a steroid or anti-inflamitory or anything like that, but was originally an anti-sezure medication that has been approved for KP treatment. At this point, I don't know much about it til I get a chance to go in and see him, but I was wondering if anyone was familiar with it or has heard anything about it?

i haven't heard anything, but please keep us all posted. i was definately hoping there would be a pill to help kp. creams are just annoying to keep up with and usually unsuccessful for me. g-d i hope you're right.

Hi

I am also new to this site. I have been suffering with KP for five years now and have barely worn any clothing that displays my red bumpy arms. I repeatedly visited my GP last year for help to reduce it prior to my wedding in December, there was no 'cure' or even reduction, I resorted to using a sun bed which didn't really help so I just used make up to cover them.

Anyway I thought I would write to enquire how you go about seeing a dermatologist. As well as the KP I also appear to develop a 'rash' every year which the doctors can't explain, other than it may be stress related. I have had several blood test for viruses which have come back clear.

This year after having my daughter 8 weeks ago the KP seems to be getting worse and has spread further down my arms. I am currently being prescibed E45, oilatum and calmurid. Has anyone got any other suggestions? This pill sounds interesting.

IF THIS IS TRUE, THIS IS BIG! WHY AREN'T MORE PEOPLE RESPONDING???
WHAT IS YOUR DERMATOLOGIST'S NAME? A SEARCH FOR "kp PILL SEIZURES" TURNED UP NOTHING.
IS THIS A SCAME OR WHAT!!!!????

Well, first a little background. I've been suffereing from KP for about 15 years now. Not only that, but i've got a triple whammy ><...rubra on my torso and thighs, alba on my upper arms, and the dreaded faceii as well. I've seen a number of dermatologists over the years, the most recent finally putting a name to the condition. Back in the 90s I was diagnosed with all kinds of things from subdermal acne to you name it. With my previous dermatologist I tried multiple highpower laser treatments with no success. Right now, I'm actually seeing a practicing plastic surgeon who treated a family member for scar damage. The family member actually happened to mention my condition and it seems that he's treated a fair number of KP patients with a fair rate of success (note, not cure) and he occassionally takes on KP patients since his original speciality is dermatology. Right now i'm on over the counter and prescription stuff, most notably Neutrogena Body Clear body scrub, which was recommended by him. It's a salicylic acid body wash that actually works rather well even with my sensative skin. Besides that I use retinA and an over the counter moisteriser. Together, i've gotten decent results. But with the seriousness, decent doesn't cut it. He mentioned to me a couple of weeks ago regarding the new drug and asked me if I would come in again to discuss it. So i'm seeing him again in December (He's in NY i'm in the midwest) to discuss the new treatment. So I was looking to see if anyone else knew anything about it. I will definitely be posting what I find out though.

EDIT NOTE: Neither he claimed, nor am I saying this is a KP cure, simply another treatment option. I don't want people getting the wrong idea. Hence why I was wondering if anyone else heard about it or had information.

i understand, but as you may know many of us become desperate, and i am very eager to see what the results are(if any). can you please tell me the name and location of this doctor, because i live here in new york....and my dermatologists have been unsuccessful to say the least.

Hi Yellow Adept- I am one of tjhose people who is "desperate" about my KP, and so, was intrigued by this post- would you be able to give me your dr.'s number just so that I could get a little more information about this? I would also like to tell me derm. about this.
Please respond!!!
Thank you,
Nancy

*bump*

Dr. is in Syracuse NY. I've got an appt with him the 22nd of Dec. so I'll know more then. He promised to send me some information regarding the treatment, but i'm still waiting on that. I'll repost the information here once I get it. Dr. is not accepting patients or referals due to the fact that he is no longer practicing dermatology.

Hi Yellowadept!

I think we all want to know...how was the derm appt?!

wat happened with this ?

maybe it was a success and he feels that he should no longer be apart of this forum as he is cleared in his eyes. i wonder why people just vanish off this forum. i think it's because they have had success...they could at least tell us what success they have had and what using.

!

so how can i help u bboy1??

I am new here too, I have a 6 mo old, and when I was pregnant it started flaring up, but after I had him my arms just were covered, they itch some and I tend to pick them (I know I shouldn't). Now they are ALLLL over my upper arms, and just past my elbow on 1 arm. I read somewhere to try Retin A and have been using it, it hasn't done too much yet, I also have tried triamcinolone cream, Amlactin, Betamide, I am on doxycycline also, and none of it really helps!! Have you or anyone else tried these? Fill me in on what to do also to help the redness if anyone knows!